If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Survey of Parents' Experience of Services Accessed for their Children

Richard_Scope
Posts: 3,175 Scope online community team

Action Cerebral Palsy is a charity that works at a national level towards improving public, professional and political awareness of the issues facing children and young people with cerebral palsy. To support this, we would like to get new feedback from parents about their experiences of the services (both statutory and non-maintained) they have accessed for their children and young people. To facilitate this, Action Cerebral Palsy has launched an online survey for parents to complete.
This survey will also serve as a follow up from the one we conducted in 2014 for the Parliamentary Inquiry and will help to measure change, if any, in families' experiences since that original survey. The information gathered through this survey will also provide evidence to the current series of All-Party Parliamentary Group sessions on Cerebral Palsy that focuses on the education, teaching and learning for children with cerebral palsy.
If you haven't already done so, we would be extremely grateful if you could share this important survey with your parent networks and social media.
The survey can be accessed at
https://forms.office.com/r/38XiXPRZGc
Many thanks indeed in anticipation.
On another note, many thanks to all of you who have participated in the recent APPG sessions. The sessions can be viewed at https://www.youtube.com/channel/UC4dDoUGf6AQaFk6Kz8zjpbw
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
Specialist Information Officer and Cerebral Palsy Programme Lead
'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
Comments
-
Done...however some questions obligatory even if you have ticked "no" in the previous question! (Q10 " did you receive and info on CP at diagnosis?" my answer "no". Q11 "if you received any info how good was it?"...!! And you have to answer that on a scale of 1 - 5 even though i didn't get any info.)Also though it mentions 0 - 25 in the intro the usual thing: no options for over 18s re educational setting. Doesn't give you the option of "college" never mind "university" (the the uni one is particularly important since EHCPs do not apply in Higher Education)
Brightness
Categories
- 55.2K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 836 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 301 Dating, sex, and relationships
- 268 Exercise and accessible facilities
- 22.2K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 704 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 770 Autism and neurodiversity
- 951 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.