Survey of Parents' Experience of Services Accessed for their Children

Richard_Scope
Richard_Scope Posts: 3,763 Cerebral Palsy Network
in Families and carers

Action Cerebral Palsy is a charity that works at a national level towards improving public, professional and political awareness of the issues facing children and young people with cerebral palsy.  To support this, we would like to get new feedback from parents about their experiences of the services (both statutory and non-maintained) they have accessed for their children and young people. To facilitate this, Action Cerebral Palsy has launched an online survey for parents to complete.  

This survey will also serve as a follow up from the one we conducted in 2014 for the Parliamentary Inquiry and will help to measure change, if any, in families' experiences since that original survey.  The information gathered through this survey will also provide evidence to the current series of All-Party Parliamentary Group sessions on Cerebral Palsy that focuses on the education, teaching and learning for children with cerebral palsy.  

If you haven't already done so, we would be extremely grateful if you could share this important survey with your parent networks and social media.

The survey can be accessed at

 https://forms.office.com/r/38XiXPRZGc 


Many thanks indeed in anticipation.

On another note, many thanks to all of you who have participated in the recent APPG sessions. The sessions can be viewed at https://www.youtube.com/channel/UC4dDoUGf6AQaFk6Kz8zjpbw

Comments

  • forgoodnesssake
    forgoodnesssake Online Community Member Posts: 512 Empowering
    Done...however some questions obligatory even if you have ticked "no" in the previous question! (Q10 " did you receive and info on CP at diagnosis?"  my answer "no".  Q11 "if you received any info how good was it?"...!!  And you have to answer that on a scale of 1 - 5 even though i didn't get any info.)
    Also though it mentions 0 - 25 in the intro the usual thing: no options for over 18s re educational setting.  Doesn't give you the option of "college" never mind "university" (the the uni one is particularly important since EHCPs do not apply in Higher Education)

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