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Survey of Parents' Experience of Services Accessed for their Children

Richard_ScopeRichard_Scope Posts: 2,829

Scope community team

Action Cerebral Palsy is a charity that works at a national level towards improving public, professional and political awareness of the issues facing children and young people with cerebral palsy.  To support this, we would like to get new feedback from parents about their experiences of the services (both statutory and non-maintained) they have accessed for their children and young people. To facilitate this, Action Cerebral Palsy has launched an online survey for parents to complete.  

This survey will also serve as a follow up from the one we conducted in 2014 for the Parliamentary Inquiry and will help to measure change, if any, in families' experiences since that original survey.  The information gathered through this survey will also provide evidence to the current series of All-Party Parliamentary Group sessions on Cerebral Palsy that focuses on the education, teaching and learning for children with cerebral palsy.  

If you haven't already done so, we would be extremely grateful if you could share this important survey with your parent networks and social media.

The survey can be accessed at 

Many thanks indeed in anticipation.

On another note, many thanks to all of you who have participated in the recent APPG sessions. The sessions can be viewed at

Specialist Information Officer - Cerebral Palsy

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  • forgoodnesssakeforgoodnesssake Member Posts: 367 Pioneering
    Done...however some questions obligatory even if you have ticked "no" in the previous question! (Q10 " did you receive and info on CP at diagnosis?"  my answer "no".  Q11 "if you received any info how good was it?"...!!  And you have to answer that on a scale of 1 - 5 even though i didn't get any info.)
    Also though it mentions 0 - 25 in the intro the usual thing: no options for over 18s re educational setting.  Doesn't give you the option of "college" never mind "university" (the the uni one is particularly important since EHCPs do not apply in Higher Education)

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