Usher Syndrome
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malc66
Online Community Member Posts: 3 Listener
Hello.
Was wondering if anyone else has usher syndrome ?
Was wondering if anyone else has usher syndrome ?
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Hello @malc66
Thanks for posting.
I must admit that before reading your post I hadn't heard of Usher Syndrome. Do you receive any support to manage your sensory loss?
One good place to look would be Facebook, there might be groups on there that will have many other people who share your condition.0
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