I have been told several times to my face that disability and epilepsy are fake. — Scope | Disability forum
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I have been told several times to my face that disability and epilepsy are fake.

sben
sben Member Posts: 27 Connected
I have been told several times to my face that disability and epilepsy are fake.

Comments

  • Teddybear12
    Teddybear12 Member Posts: 765 Pioneering
    Hi @sben  I hope you enjoy being part of the Community. If you have any questions please ask. It is not very kind to call your conditions fake. In what way has this been done ?
  • nannymaroon
    nannymaroon Member Posts: 238 Courageous
    sben said:
    I have been told several times to my face that disability and epilepsy are fake.
    That's horrific,sben.people can be so cruel and judgemental. I've been told that disability is a punishment from God. And I should pray instead of fearing death or becoming more disabled. This was someone who thinks the earth is flat and covid vax is DNA altering poison.😐
    I'm fed up with people who have no understanding of our issues telling disabled people how to live or doubting us. How dare they.keep your head high,sben live your life how you choose, don't be intimidated by ignorant cruel people.
  • lillybelle
    lillybelle Member Posts: 571 Pioneering
    I have uncontrolled epilepsy , a hidden disability.
    I must admit when I tell people I have never suffered abuse.
    However people do seem to pity me and that makes my blood boil.
      I’m well educated, not stupid and like the assessor quite nicely put on my assessment form that I am not mentally ill.
    ( must admit that made me laugh)
       So I expect to be treated like any other person.
    take no notice of what stupid comments some people may say. Obviously not very knowledgeable.
  • TheAlien
    TheAlien Member Posts: 42 Courageous
    I've been told that my physical disability is all in my mind and if I think positive I won't be disabled anymore.

    I was also told by a candidate in my local elections that I couldn't call myself disabled as he didn't like the word!  Suffice to say, he didn't get my vote.

  • lillybelle
    lillybelle Member Posts: 571 Pioneering
    You think positive!
    best advice ever given
    take pity on people who don’t know any better.😆
  • woodbine
    woodbine Community Co-Production Group Posts: 5,323 Disability Gamechanger
    I have had epilepsy for 24 years now, started when I was 38 after my second stroke, I have thankfully only had positive comments from people, although I must admit I don't go round telling people only very close friends know, unless they witness me having a seizure.

    It does amaze me though that in 2021 there is still a stigma attatched to epilepsy which is rather sad, especially when there are over 500,000 of us with the condition.

    And for what it's worth I do think that scope could be more proactive in raising awareness about epilepsy. (gets down off soapbox).
    I am a person with epilepsy not an epileptic, my illness doesn't define me.
  • lisathomas50
    lisathomas50 Posts: 4,597 Disability Gamechanger
    I think there is alot more scope can do about alot of other things but they are short staffed like every where else I expect its hard to fit in what they already do 

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