Hello... Would welcome advice ,tips for navigating the PIP Krypton Factor — Scope | Disability forum
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Hello... Would welcome advice ,tips for navigating the PIP Krypton Factor

Sillymoo007
Sillymoo007 Member Posts: 8 Listener
edited October 4 in PIP, DLA, and AA
Hi all. Life is hectic. Mum of 5 .
My now 16 year old has ASD, DCD, depression, anxiety and an ongoing complicated pilonidal sinus. 
Have to move him from DLA to PIP. Yay. More stress 😜.
Thought I'd stop lurking,sign up and chat.😁
Would welcome advice ,tips for navigating the PIP Krypton Factor.
Tagged:

Comments

  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,530 Disability Gamechanger
    edited October 2
    Hi @Sillymoo007 - & welcome to the community. I can well imagine life is indeed hectic with 5 children! As far as PIP goes, we will all try & help you along the way. :) The first thing to remember is that PIP is not about any diagnoses, but how your son's disability affects certain activities of daily living &/mobility......tho if you've been lurking, you might already know this.
    Next, have a look at the activities/descriptors that are looked at with PIP: https://www.cambridgeshire.gov.uk/asset-library/Personal-Independence-Payment-Descriptors-and-Scores-April-2021.pdf
    Then, give a couple of detailed examples as to the difficulty your son faces for each applicable descriptor; what exactly happens, when did it happen, did anyone witness this, & were there any consequences, i.e. how did it leave your son feeling after attempting/doing an activity?
    Can he do an activity safely, to an acceptable standard, repeat it as often as one would reasonably expect, or does it take him much longer than someone without his disability? See this mentioned at the end of the first link above.
    Lastly, do please come back with any questions.

  • Sillymoo007
    Sillymoo007 Member Posts: 8 Listener
    Wow. Thankyou so much. I had a quick nosey at the mental health link and it's laid out,in easier to understand language. 
  • Teddybear12
    Teddybear12 Member Posts: 765 Pioneering
    Hi @Sillymoo007 I hope you enjoy being part of the Community. If you have any questions please ask.
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,530 Disability Gamechanger
    Yes, I edited my post to add the mental health link, which I'd nearly forgotten. Do also try keeping a diary for a week or so; it's easy to forget how much support, & or prompting, your son might need, as you're so used to providing this.
    Just try & complete a few questions at a time, & you can always add extra pages at the end. Just ensure you put your son's name & National Insurance number on each page. You can also ring the PIP enquiry line on 0800 121 4433 to ask for extra time to complete the form, & you will be given another 2 weeks without question. Do however remember that there can be postal delays, so try & post his claim form in good time. Keep a copy of everything 'just in case,' & get a free Certificate of Posting from your Post Office when sending the form off.
  • Sillymoo007
    Sillymoo007 Member Posts: 8 Listener
    I have a telephone appointment on Tuesday morning with a local welfare rights place. I tackled the DLA for him myself and he got HRC LRM award. I'm not so confident this time.i know I know him best but I feel I need help. Thankyou for the quick ,insightful responses. Why didn't I join sooner! 😎
  • Ross_Scope
    Ross_Scope Posts: 4,955

    Scope community team

    Hello @Sillymoo007

    Welcome to the community, good to see you joined us after a bit of lurking :) 

    It seems as though you have a lot on at the moment, and I hope the replies above from other members have been helpful. Do you and your son receive all the support you need to manage his conditions?
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    Talk to our chatbot and give us feedback on the community.
  • mikehughescq
    mikehughescq Member Posts: 7,474 Disability Gamechanger
    edited October 3
    First thing to say is that it’s not the Krypton Factor. It really isn’t especially complex. Can it be demonstrated that 8 or 12 points can be scored? How is that done? By showing that one or more of those 12 activities can’t be performed reliably. The definition of reliably could not be more straightforward. See https://pipinfo.net. How do you show they can’t be done reliably? Through 1 or 2 detailed anecdotal examples of recent ish attempts to perform each of the points scoring activities. Nothing much more to it than that. Detail is your friend. 2 examples probably equals a side of A4 at most. See https://forum.scope.org.uk/discussion/56365/pip-form-filling#latest

    Remember to use the extra information section to detail the symptoms of the conditions rather than doing that in answering the questions themselves. Also use that section to request the appropriate length of award. If you don’t then their guidance suggests you get the shortest award available. Onus is on you. 
  • Sillymoo007
    Sillymoo007 Member Posts: 8 Listener
    edited October 3
    Morning @Ross_Scope
    Very recently,my son lost both his mental health practitioner and psychologist at Autism services. The trust has no plans to replace. Funding issues apparently.He has started to see his psychiatrist more as he recently had a suicide attempt. He also has daily wound care visits from children's community nurses. But that's about it. 
    We do our best,but our son lives in a constant state of panic/low mood etc. It's not easy.
  • Sillymoo007
    Sillymoo007 Member Posts: 8 Listener
    Also I apologise in advance. I'm still trying to navigate my way around this site and I'm not sure if I'm tagging people correctly. 🙈
  • Sillymoo007
    Sillymoo007 Member Posts: 8 Listener
    Thankyou @mikehughescq I wear certainly bare that in mind. 
  • Ross_Scope
    Ross_Scope Posts: 4,955

    Scope community team

    Hello @Sillymoo007

    Thank you for your response, I'm sorry to hear that your son recently had some support removed, and it's concerning to read about the suicide attempt. 

    Please ensure you call 999 if you ever feel as though your son is a risk to himself, and if he ever wants to access immediate support and advice, the below resources may be useful:
    • Samaritans, who you can contact on 116 123
    • The Shout text service, which he could access by texting "Shout" to 85258.
    • This page on the Mind website, which covers a range of coping techniques.
    • The National Autistic Society (NAS) who offer a free helpline
    I have sent you an email from [email protected] to see if we can offer you any further help at all.
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Talk to our chatbot and give us feedback on the community.
  • Sillymoo007
    Sillymoo007 Member Posts: 8 Listener
    @mikehughescq thankyou for the links. I've spent a few hours reading the pipinfo.
  • dittydora
    dittydora Member Posts: 7 Listener
    Im so glad i found this forum the advice is so spot on an helpfull and its nice to be heard understood feel less alone trying to navigate this pip form 😊 as crps is so not black and white but the questions are!!
  • mikehughescq
    mikehughescq Member Posts: 7,474 Disability Gamechanger
    Okay, so now don’t overthink it. The only thing you need to do now is focus on detailed anecdotal evidence. Forget the complexity of any health conditions. Everyone wants to believe they’re unique, and they are, but, all conditions without fail are complex, variable and have significant invisible elements. Everyone thinks no-one will understand their conditions. Almost none of that will get you PIP.

    Detailed anecdotal evidence. That is all.
  • dittydora
    dittydora Member Posts: 7 Listener
    I hear youv😊 thankyou
  • dittydora
    dittydora Member Posts: 7 Listener
    You lol i blame my crps
  • dittydora
    dittydora Member Posts: 7 Listener
    Anyway update ive now answered 2 questions with this online pip form 2 days that took only 13 more to go 🙈
  • Teddybear12
    Teddybear12 Member Posts: 765 Pioneering
    Hi @dittydora Keep going, you will get there. Good luck.

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