Hi, my name is TessaFreddy! My son Freddy has just turned 5 and has moderate spastic diplegia
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TessaFreddy
Online Community Member Posts: 2 Listener
Hi, my son Freddy has just turned 5 and has moderate spastic diplegia. We have been living in New Zealand for a long time and are now moving back to the UK for more treatment options and to look after aging parents. I would love any advice on what options/therapies are available to help Freddys mobility and also would love to meet other families with children with Cerebral Palsy.
Thanks Tessa
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Comments
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Hi @TessaFreddy - & thank you for joining Scope, Tessa. I think perhaps our CP Specialist Information Officer is in the best place to advise you. @Richard_Scope please would you have a chat with this poster, thank you.
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Hi @TessaFreddy welcome to the forum
https://www.scope.org.uk/advice-and-support/support-groups-parents/
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Hi @TessaFreddy
It's good to meet you
I would suggest if you are returning to England:
The Bobath Centre | Improving the independence, health and wellbeing of people living with cerebral palsy
Specialist movement therapy UK, Childrens Physiotherapy (the-movement-centre.co.uk)
Cerebral Palsy Clinic (cpclinic.co.uk)
Children and young people with motor difficulties | Great Ormond Street Hospital (gosh.nhs.uk)
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Hi, I have cerebral palsy myself and what I have found the most helpful is hydrotherapy, as this relaxed my muscles enough for the physio to properly stretch them. I also bought a hot tub for home use, to help with this. These can be costly, but they do help massively. I haven’t tried this myself, but other CP individuals have found vibration plates helpful in reducing spasticity. I wish the best for you and your son.1
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Thank you Poppy, thats really helpful.
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