Hi, my name is claire29! Any adults with CP who have had a knee replacement? — Scope | Disability forum
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Hi, my name is claire29! Any adults with CP who have had a knee replacement?

claire29
claire29 Member Posts: 4 Listener
edited October 7 in Cerebral palsy
I was looking for some experience of any adults with CP who have had a knee replacement. It’s something I’m going to need, so wanted to know how anybody got on and how was the recovery. 😀
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Comments

  • Ross_Scope
    Ross_Scope Posts: 4,890

    Scope community team

    Hello @clare29

    Welcome to the community, it's lovely to see you join us.

    I hope you are able to hear from others who have experience here. When you say you are going to need it, do you mean you just think you will in the future or are you already planning for it with your GP / specialist?
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  • claire29
    claire29 Member Posts: 4 Listener
    It’s been suggested due to severe osteoarthritis, and I’m a bit nervous about recovery time. And if it’s the right option 
  • Richard_Scope
    Richard_Scope Posts: 2,912

    Scope community team

    edited October 11
    Hi @claire29
    I haven't had any replacements myself but I do know a few people that have had hip replacements.

    The key things are:
    • Make sure the consultant is fully aware of your CP
    • Be honest about how your CP affects you (none of us are good at this)
    • Seek assurances that physiotherapy is in place for the post-op period
    • Make sure it's understood that your recovery may take a little longer due to CP
    • What support will you need/have at home e.g moving your bed down stairs
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  • claire29
    claire29 Member Posts: 4 Listener
    That’s really good advice, I do have a stairlift but might struggle with it post op.  I had a lot of surgery when i was younger. It gets more complicated when your an adult, Will have to rally the family 🤣
  • Reg
    Reg Member Posts: 56 Pioneering
    Hello 

    I have mild CP and hip dysplasia with arthritis in the hips and knees . I saw two hip surgeons who said they could replace my hips but they would not recommend it because of the increased risk of sub luxing  after surgery with CP and the risk of needing replacements again within a few years because of my gait. Apparently the new  joints wear out quicker if you have poor gait.

    I moved to a bungalow instead but I have heard of others who have had replacements and been fine . Just try to find the right surgeon as mine said many would replace mine but I was the one who would have to live with the after affects of surgery.

    It may come down to your quality of life now - I was warned I may not be able to walk if I had surgery to replace them so for me I would rather manage on crutches for now. 

    Please do not let me put you off as you may be totally different if you have better joint formation or muscle control but it is as well to investigate your options 


  • claire29
    claire29 Member Posts: 4 Listener
    Thanks Reg, sorry your still having to struggle with pain, but it really feels like a gamble to have surgery as you say your left with the consequences if it doesn’t go well. For now I’m managing with a steroid injection, it does help for short periods of time. Think I might have to bite the bullet and go for it, it’s really restricting what little mobility I have. 

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