My son has CP, and was refused mobility part of PIP. He's definitely entitled. What should I do? — Scope | Disability forum
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My son has CP, and was refused mobility part of PIP. He's definitely entitled. What should I do?

cc1234 Member Posts: 1 Listener
edited October 8 in PIP, DLA, and AA
Hi everyone 

Having seen the posts on the Pip My son too has cerebral palsy left sided hemiplegia.He was refused the mobility part scoring zero .he told them over the phone assessment that he cant go out alone due to social anxiety. He cannot plan a route of a journey without been accompanied by me his mam .and when we do go on public transport my son has a tendency to stare at people without even been aware of it which is also a safety issue .He has to be prompted he is staring .He finds been in crowds ,on the street in supermarkets very overwhelming. Yet the decision that they made was he could. My son also became emotional while on the phone during the assessment as talking about his disability effects him. Yet they said he didnt appear to show any anxiety during the call which was not true .what makes me irate is who are these ppl that make these decisions .the decision they made regarding my son were so totally I want him to appeal .but he got upset today upon receipt of this letter .
My son is 27 .he does not go out to anywhere without been accompanied by me .he wont even go to the corner shop by himself .I have seen so many other ppl were also refused from posts I've read here .is it worth to appeal this decision .or is there say the final word ..this is totally disgusting .they are making such inaccurate assumptions and are they even aware the effect of their decision making it has on the individual .I'm really disgusted .my son has always received the living opponent of pip .they refused him mobility the first time and a friend told me to apply again for him as he definitely is entitled to it .I'm at a loss as to what to do now .


  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,613 Disability Gamechanger
    Hello @cc1234 - & welcome to the community. I'm so very sorry about about your son's decision letter. As you have seen, sometimes people are understandably upset by their decision letters; often 'cut & paste' responses from assessors don't reflect a person's disabilities. However, & I hope you don't mind me mentioning this, sometimes the PIP claim form hasn't helped reflect your son's difficulties adequately. The best way forward is to do a Mandatory Reconsideration rather than applying again.
    You can use this form:   or write a letter putting your son's name & National Insurance number on each page.
    With this you should give a couple of detailed examples for each applicable activity/descriptor your son has difficulties with, i.e. when did it happen, why, what exactly happened, who witnessed it (presumably yourself), & what, if any, were the consequences of attempting/doing this. You correctly mention safety, which is important, but is he a danger to himself or others with this?
    Please have a look at the descriptors that are looked at with PIP, & the notes at the end about safety, etc.:
    Hope some of this helps, & please do ask any questions. And, hoping you can, please put the decision letter behind you; disagreeing with the letter won't get your son PIP, accurately describing his issues with the anecdotal info as given above is the way forward.
  • Teddybear12
    Teddybear12 Member Posts: 782 Pioneering
    Hi @1234 I think a lot of members get upset talking about their disabilities as most of the time we just get on with life as best we can. When talking or filling in forms we have to focus on it to much and that can be very distressing. Perhaps once he has calmed down a bit he will see that he needs to appeal. He has got his wonderful mum in his corner. Good luck.
  • Alex1970
    Alex1970 Member Posts: 21 Connected
    @cc1234, Welcome to the community. I can totally understand how your son feels as my son was the same. He refused to have anything to do with a PIP claim which made life so difficult as I had to work full time and look after him. I am lucky that his older brother is very supportive. It makes me so angry that people have to have such a battle on their hands to get what they deserve. I really hope you get everything sorted. 
  • calcotti
    calcotti Member Posts: 3,069 Disability Gamechanger most of the time we just get on with life as best we can. When talking or filling in forms we have to focus on it to much and that can be very distressing. ..
    That is so true. "Mustn't grumble, could be worse" works well for getting through live but not for filling forms.
    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.


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