If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

The poem called Living with Cerebral Palsy

Options
Globster
Globster Community member, Community Volunteer Host, CP Network, Scope Member Posts: 2,558 Disability Gamechanger
edited October 2021 in Coffee lounge

The poem called Living with Cerebral Palsy

A young man called Jay.

He was born premature, doctors hope to survive the night

 His  small body had fought while being on life support

Doctors want to want to turn his life support machine off 

Jay proved the doctor wrong and he became strong.

He has Cerebral Palsy, which means he can not use his legs

There had been days where he had  gotten depressed and stressed

He knew this was a test by god.

Jay nodded to god.

He said will define the odds.

There are some days he feels great pain and his legs feel tight.

Which was not a great sight for his family members to see

As they wanted to see him pain-free.

His consultant told him to try baclofen tablets.

Which did not agree with his belly.

Then his consultant suggested he should try a baclofen pump

Which has  reduced the tightness in his legs

He heads to bed with less dreadful of not being able to sleep

Jay knew he what able to sleep deep into the night

The next morning he woke up bright and not yarning in the morning. 

This was transforming Jay. 

Jay has found his lost voice through poetry writing.

Lighting may people's hearts


I am a Community Volunteer Host. Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.

Comments

  • Tori_Scope
    Tori_Scope Scope Posts: 12,499 Disability Gamechanger
    Options
    It's good to hear more about your story, and to hear that you managed to find a solution with your medication that works for you @globster :) 

    National Campaigns Officer at Scope, she/her

  • Justcheckingin15
    Justcheckingin15 Community member Posts: 370 Pioneering
    Options
    Good work @Globster
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.