Klippel-trenaunay syndrome — Scope | Disability forum
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Klippel-trenaunay syndrome

AngJ76 Member Posts: 1 Listener
Anyone else with Klippel-trenaunay syndrome, would love to contact for support. 


  • chiarieds
    chiarieds Community Co-Production Group Posts: 11,025 Disability Gamechanger
    Hi @AngJ76 - I just wanted to welcome you to the community. I'm sorry, but as you probably know, Klippel-Trenaunay Syndrome is quite rare, & I'm unsure that any of our current members have this (I have searched). Having said that, many of us are here with varying disorders; some rare, some fairly common, yet you'll find we often share much in common, & have that all important bit of understanding too. So, thank you for joining, & I hope you find this a very friendly & supportive place to be. :)
  • Tori_Scope
    Tori_Scope Posts: 6,620

    Scope community team

    Welcome to the community @AngJ76 :) Thanks for joining!

    As chiarieds has said, I'm not sure if we've had another member join with the same condition off the top of my head. Is there anything in particular you're struggling with, in terms of managing your condition? 
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