If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Legal help and responsibility

Options
harry01
harry01 Community member Posts: 217 Courageous

I was just wondering if anyone could give me advice on help complaining. I just feel with how the health service including the two surgeries I have been at plus the hospital is unforgivable in their response to my skin condition. 


It's had a large impact on my mental health. Even now they still haven't prescribed another shampoo since July when it's pretty obvious what they prescribed doesn't work. 


It's been a farce really. They said to move onto the ombudsman but frankly at this stage you feel that they need to be threatened with some kind of repurcurssions as they don't seem interested in listening to patients. 

Comments

  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    I have actually gone back to studying biology and chemistry and just going to get the qualifications I need to challenge them and their testing. That dermatologist was a pompous man. I have to speak for other people and maybe we can work together. Anyone experienced something similar. I am interested in people who were misdiagnosed and then went through mental turmoil through the experience. 

    It's arrogance and it's not acceptable
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
    Options
    Hi @harry01 I'm sorry to hear about what you've been going through, it's very frustrating when we feel we aren't listened to or valued.

    Have you spoken to your GP (or any other GPs at your surgery) about your prescription , and any alternatives that might work better for you? Perhaps you could chat to them about the impact it's been having on your mental health. What do you feel is concerning you the most?

    Do you feel as though you're getting enough support for your mental health at the moment? If you'd rather not go through your GP, did you know you can self refer to get support?

    To help our members find your post, I've marked it as unanswered. Hopefully any with similar experiences can share those with you.

    If we can help any further, please don't hesitate to ask. 

    Alex
    Online Community Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to give us feedback? Complete our feedback form now.
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    Hi Alex,

    I discussed it with them at length. My interactions with them on this have been incredibly distressing. 

    Basically they have a limitation in diagnosing certain skin conditions but have made their lack of efficiency in this about my mental. My 'delusion'. It's a form of psychological abuse. So my means of helping my mental health is to distance myself from them and just follow up on asking about the prescription that this dermatology clinic said they would provide but apparently have to take another 2 weeks on top of the several years this has been going on.

    I mean, how can you respect people who don't, at the very least, accept your account of cause and effect with buying the product and what happened when it went on your skin. There was a clear and obvious connection. 

    Its directly similar to how I got a pain disorder from doing something to my back at 5. There response that there was 'nothing' lead to me getting mentally ill. So they've been abusive basically and I distance myself from them. 

  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
    Options
    I'm sorry it's been so distressing @harry01, it sounds to me as though you've taken some positive steps to look after your mental health, which can be a challenging thing to do, so well done.

    Have you discussed with the dermatology clinic what will happen after those 2 weeks?

    It can be difficult getting the right support for your mental health, but as a reminder you can refer yourself to IAPT (Improving Access to Psychological Therapies) services without needing a referral from your GP, and these services are delivered in confidence. 
    Online Community Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to give us feedback? Complete our feedback form now.
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    I don't believe in psychological therapies. I don't believe they help people mostly. Not one of them even listened to me, nor did anything to put pressure on the health service to actually be a health service and treat the long overdue skin condition. 

    It's opened my eyes up to how hopeless so many people are. They don't have the skills to understand their limitations. If a random item off the internet can dupe so called 'leading authorities' on skin conditions, what it really suggests is these people are more arrogant than they are efficient. 

    The gut biome is interesting. The skin biome is interesting. Be interested and curious. Who the hell is in charge of this mess? Who made the decision to cause all this trauma. I'll never trust anyone in my life again. Random dodgy seller on Amazon marketplace, no repurcussions as no 'evidence'. Amazon do nothing, doctors do nothing, dermatologists. I have probably spent 1,000 pounds over the last few years specifically trying stuff on my skin because what else do you do in the circumstance?

    This happened when I was 30. I am 37 now. I actually feel extreme anger. Just laugh at me and the fact I have this pain disorder and brain impairment so I have no power. I am an extremely talented man. If I was well I would be treating people properly because I would know when I don't know. 
  • Libby_Alumni
    Libby_Alumni Scope alumni Posts: 1,251 Pioneering
    edited January 2022
    Options
    Hi @harry01

    I'm sorry to hear about your current experiences with the GP and other medical professionals. It must have been a challenging time for you. 

    I understand that not everyone agrees with psychological therapies and some work better for some people than others. But I believe it's a case of trial and error and finding the right therapist/therapy can be quite difficult at times :) I am sorry to hear that none of them listened to you, given that it's their job to listen and provide support.

    There's been a lot of recent interest in the gut microbiome in relation to skin issues and also mental health. There does appear to be a link between the internal terrain of the gut microbiome and other functions of the body (i.e., the skin and brain/mental health). Please see the research here about the gut microbiome and the skin condition, psoriasis (which I actually have too).The research suggests that microbiome alterations may act as potential pathogenic factors for psoriasis. 

    Do you notice if anything 'flares' your skin condition? For me, stress, dairy, and gluten all make my psoriasis worse. It would be interesting to know :)

    I hope the above is interesting and if you have any further questions, then please let us know.

    Libby
    Online Community Information Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did we do a good job at answering your queries or concerns? If so, complete our feedback form now. 
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    Hi @Libby_Scope thanks for your response. It doesn't flare up, my skin just has this yellow stuff on it. It's a living thing.

     A parasite but they don't seem to have come across it before. I was hoping that more people bought it from this seller and they had an investigation into the company. I suppose most people would not be mad like me and simply throw it away. What a nasty company.

     That's what I am saying to you. The moment I applied this stuff 'a lot of it' it encased and clung to my skin. It has an unpleasant odour. That's why the cause and effect of it was absolutely clear. 
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    Aghhhhhhh. Can they do anything? I don't even know who I see privately for this. I give up on all of this rubbish. They just take advantage of illness and hope you don't have the means to take legal action or that a certain period has passed where you can't. They have no interest in truth and cannot follow the scientific method. 
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    I'd have about as much luck with them as asking some random person off the street. There ought to be repercussions for treating people this way. 
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    I really feel like giving up on all this stuff. I feel like giving up on life as it's all just been a complete misery. They don't listen to me at the hospital and they don't listen when I complain either. 

    I'm fed up of this. I was fed up of it several years ago. Everything I go through seems utterly pointless. I can't even get angry any more I just despair. What do I do? 
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
    Options
    I would reflect and take sometime to consider if it is all worth the stress it puts you under 

    I know you want a treatment that works and that's understandable but the complaints may just be adding to your situation 

    It's not easy to get a complaint in your favour when dealing with massive organisations who have legal and financial backing

    Have you involved your local mp at all not that I think they are all helpful 
  • Libby_Alumni
    Libby_Alumni Scope alumni Posts: 1,251 Pioneering
    Options
    Hello @harry01,

    I'm so sorry to hear that you're currently feeling like this, you seem really frustrated with what's going on at the moment and I can understand why you might feel that way. It's not nice to feel as though medical professionals are not listening to you.

    It's great that you're speaking to us so openly about this, because we want to help and listen. Do you have any further support from family and friends at the moment who can support you too? You mentioned that you felt like giving up on life; we're so sorry that you feel this way and we want to provide additional support for you. Firstly, Mind is a fantastic mental health charity that has a helpline and text service. It also offers a great online community that helps you connect with others who are going through difficult times with their mental health - it's called Side by Side. 

    We will also be sending you an email with additional resources, so please keep an eye out for that from our community inbox (i.e., community@scope.org.uk).

    Please remember, if you feel as though you're in immediate danger, call 999 or go to your local hospital. 

    Take care now and we will speak to you soon.

    Libby
    Online Community Information Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did we do a good job at answering your queries or concerns? If so, complete our feedback form now. 
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    I give up. I spoke to the hospital yesterday. The person dealing with my case still isn't back in hospital. I spoke to this woman who I told I had used the antimicrobial cream twice a day in addition to the shampoo once a week. What they told me to do. 

    The woman over the phone says to keep using it and it will work despite initially not knowing what the problem even was or what the diagnosis is or anything at all. So I pointed out I had been doing it for months and she just put the phone down so I sent the hospital a complaint again. 

    I've been looking at seeing a parasitologist as they haven't even provided the reasoning behind using this cream and shampoo and what it's for. I have decided to use more of this antimicrobial cream or just cover the area more thoroughly and reapply whenever I wash the area. They haven't advised this but they have advised nothing so I want to make fools out of all of them. I might do a video diary documenting its use and pointing every step. 

    I am furious with them. Even how they speak to you just shows extreme arrogance rather than anything else. 

    When I had a known parasitic infection it was treated in a matter of days and it was obvious that it was working. I was able to discuss it with the chemist when the first cream failed, discuss how to correctly apply the lotion and what steps to take. When it worked it was obvious it was working. 




  • Tori_Scope
    Tori_Scope Scope Posts: 12,503 Disability Gamechanger
    Options
    I'm sorry to hear this is ongoing @harry01. How are things now, a week on? Has using the antimicrobial cream helped at all?
    National Campaigns Officer, she/her

    Sign our petition calling on politicians to stop demonising us
  • harry01
    harry01 Community member Posts: 217 Courageous
    Options
    @Tori_Scope thanks for asking. No response at all. I've used this since July. 
Complete our feedback form and tell us how we can make the community better.