Hi, my name is Tre! Would i be able to have a careline package in my home?

Tre

I have PNES my doctor tried telling me it was all in my head, funny really seen has 3 times I have been in hospital and had a cluster of sezuires which lasted over 1 ad half hours.  I came round didnt know where I was or what year I was in

janer1967

Hi and welcome to the community Feel free to join in or ask any questions 

Libby_Alumni

Tre said:

I have PNES my doctor tried telling me it was all in my head, funny really seen has 3 times I have been in hospital and had a cluster of sezuires which lasted over 1 ad half hours.  I came round didnt know where I was or what year I was in

Welcome to the community, @Tre how are you today?

I'm sorry to hear about your experiences with regards to PNES. Are you currently receiving medical support from a doctor that you can trust/be honest with? 

The community is a great space to meet new friends and ask any questions that you might be unsure about with regards to your own health experiences or others. To start, I would recommend the coffee lounge as it's a nice place to socialise and play some fun games. 

If you have any other queries or questions, please just let us know as we are here to help. 

Libby

L_Volunteer

Hi @Tre

Welcome to Scope's forum. It is great to see you have joined us. Unfortunately, I have no advice to provide other than to talk to people you trust. However, I did want to say why oh why is this too often a common experience for people with chronic conditions

I am so glad you found the courage to reach out to us. I always appreciate how much courage it must take to reach out, especially for the first time. If there's anything specific we can do to support you, please don't hesitate to let us know!

Tre

L_Volunteer said:

Hi @Tre

Welcome to Scope's forum. It is great to see you have joined us. Unfortunately, I have no advice to provide other than to talk to people you trust. However, I did want to say why oh why is this too often a common experience for people with chronic conditions

I am so glad you found the courage to reach out to us. I always appreciate how much courage it must take to reach out, especially for the first time. If there's anything specific we can do to support you, please don't hesitate to let us know!

Am wondering would i beable to have a careline package in my home as my son works from 12 till 8pm so am on me own till then just if i have a sezuire or i feel funny at least i cld contact someone

Libby_Alumni

Tre said:

Am wondering would i beable to have a careline package in my home as my son works from 12 till 8pm so am on me own till then just if i have a sezuire or i feel funny at least i cld contact someone

@Tre, I'm not too familiar with careline packages unfortunately (yet, some of our members might be able to signpost you to various resources). However, you can also apply for a needs assessment by your local social services, which will find out what help and support you need - like healthcare, equipment, and help with regards to residential care. The link below might be helpful in determining what support you are eligible for:

•  Apply for a needs assessment by social services - GOV.UK (www.gov.uk)

I will also move your comment into our 'housing, transport, and independent' living category, in the hope that our other members will share their experiences with you too  

I hope the above is helpful and let us know if there's anything else that we can do to help.

Libby

poppy123456

Hi,

The first step to care and support would be a needs assessment. Once this is done it will determine whether help/support can be given. You will also have a financial assessment, this is to work out how much you'll have to pay towards the cost of the care you receive. The rest can be paid through direct payments. The money from this can only be used on what's stated in your needs assessment. https://www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/personal-budgets/