Moving house and need advice about support — Scope | Disability forum
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Moving house and need advice about support

Nazely
Nazely Community member, CP Network, Scope Member Posts: 6 Listener
edited February 2022 in Housing and independent living

I am 52 and have cerebral palsy, which is relatively mild and therefore I can live independently of any care, apart from employing a cleaner who comes for an hour, or so once a fortnight who helps me with some jobs that I can't manage myself.  I also take lodgers who help me financially and offer some company.  However, I have found this quite difficult, as there are times when I feel fatigue (a symptom of my disability), and unable to do some minor jobs, and I don’t have any backup – they don’t even open the kitchen blind in the morning!  They also can be very condescending towards me and spend most of their spare time in their room, while I spend my evening on my own! 

I spent several months in Carmarthenshire with my mother, and found the Welsh to be very friendly and chatty, and I want to move there.  I want to make sure that I have have support for my disability, and don't feel that I am 'running' to keep up with ableist expectations of me, which have led to me being so isolated.

Can anyone share their experiences of living independently? What support do you receive?

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Comments

  • Nazely
    Nazely Community member, CP Network, Scope Member Posts: 6 Listener
    Can anyone anyone offer me any advice?

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  • Tori_Scope
    Tori_Scope Scope Campaigns Posts: 12,462 Disability Gamechanger
    Hi @Nazely :) Apologies that this post didn't receive any replies. My comment will 'bump' it back up into recent discussions, and I hope that someone who's been through this will be able to share their personal experience.

    Have you ever had a needs assessment from your local authority's social care team? This could allow them to identify whether there's any support you're not currently receiving, that you might be able to benefit from. 

    I'm sorry to hear that you haven't always had positive experiences with lodgers. When you're advertising for lodgers, do you make it clear that you'd prefer to have some company in the evenings, and that you'd like them to do some things around the house, such as opening the kitchen blind? I can imagine that there are some lodgers who'd prefer to keep themselves to themselves and not mix with other people, but others who may be more interested in socialising and spending time with you.
    National Campaigns Officer, she/her

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