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Hi, my name is Ricky

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PharaohMan86
PharaohMan86 Community member Posts: 2 Listener
in Start here and say hello!
Hi I severely suffer with M.E for 7 years, I'm always very tired & spend most of my time asleep, I can't do any activities because the slightest thing is like running a marathon, mentally I'm really struggling, nice to meet everyone 
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  • chiarieds
    chiarieds Community member Posts: 16,127 Disability Gamechanger
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    Hi @PharaohMan86 - & welcome to the community. I'm sorry to read you have M.E. as this seems a very difficult condition to live with.
    Have you discussed the mental aspect of this with your GP? Hopefully they may be able to help.
    It's good to 'meet' you too, & I'm sure you'll find the community both helpful & supportive. :)
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  • PharaohMan86
    PharaohMan86 Community member Posts: 2 Listener
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    Thank u guys, I'm just hoping to meet people on here who suffer what I go through & for any advice & also to make friendships with people who are the same as me, yes I hav been on at my GP but she is pretty useless, also been to class sessions 5 years ago but I also found it useless lol, nice to meet u guys 🙂
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  • MissMarple
    MissMarple Community member Posts: 187 Pioneering
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    Welcome to the community @PharaohMan86 I'm also a member of the sloth club, need to nap after breakfast.  :smiley: Hope you'll find advice and friends here. I know that even getting online can be difficult when one is exhausted.
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  • Libby_Alumni
    Libby_Alumni Scope alumni Posts: 1,251 Pioneering
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    Hello @PharaohMan86, 

    Welcome to the community and thank you for sharing a little bit about yourself and your condition :). I've heard M.E is a challenging condition and can be really frustrating at times, given the limited energy levels. Do you feel as though you're getting enough support from family/friends to help you with the condition? 

    Thank you for reaching out and I hope you find the community a welcoming and friendly place. 

    Libby
    Online Community Information Coordinator
    Scope

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  • Dempseym
    Dempseym Community member Posts: 32 Courageous
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    Hi @PharaohMan86,
    Welcome to the community.   I am glad you have joined our community, welcome!  It must be very difficult for you but we are here for you no matter what your disability throws at you we are here for you. 
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  • [Deleted User]
    [Deleted User] Posts: 0 Listener
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    Hello @PharaohMan86 I would like to welcome you to the community. 
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  • Danielle_2022
    Danielle_2022 Community member Posts: 266 Pioneering
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    Morning @PharaohMan86,
    Thank-you so much for taking the time and using up some of your energy to tell us a bit about your story here. I have a few friends with M.E and their experiences sound so similar to yours, so I wanted to reassure you that you're not alone. I'm also really glad to see that this post has found a few people with M.E from the community, too. I hope that you'll have a chance to connect and feel less isolated. I know that there has been so much difficulty around the NICE guidelines for treatment, which has made it harder for a lot of people to access the right support, too. If you aren't having much luck with your current GP, it may be worth looking to see if it's possible for you to get an appointment with someone else. As ever, everything is a fight & its one that can be exhausting at the best of times, but I do hope that you have support from family/friends with it all. We'll do whatever we can for you, too. Keep in touch, whenever you're able :)
    Community Volunteer Host (she/her) with a passion for writing and making the world a better place for disabled people to exist.
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