Refused PIP. Where do I go from here?

milkybarkid

I applied for pip and they’ve refused based on what my GP said bearing in mind I don’t see my GP about my conditions. 
I have fibromyalgia,PTSD, anxiety,Asthma,Hyperbobility (that causes severe pain) Autism amongst others things. I’m under a psychiatrist, mental heath… I currently don’t take medication for fibromyalgia as the tablets they gave me cause severe headaches. 

I received little to no help from the GP in fact because I said I didn’t feel supported or listened to she had a right go at me on the phone and then gave me the silent treatment and wouldn’t answer me. Due to Autism I find communication really hard and particularly hard with doctors.
I don’t understand how they can justify turning me down? I did mention the only thing the doctor would say at best is what I’ve told them! They don’t live with me, they don’t see the panic attacks out side they don’t see me not eating for days on end they only know what i tell them… my lack of communication with the doctor is because of my conditions. I don’t have a life I don’t go outside unless I absolutely have to and even then I need someone els with me, I’ll go days without food If It means I have to go out alone, I can’t understand written letters ect. I suffer severe pain on what I can only describe as my whole body I tired of being in pain just walking a short distance leaves me exhausted and CFS doesn’t help Just getting out of bed and beginning the day leaves me exhausted not tired physically drain mind and body I can’t get through a day without sleeping most days I’m just to exhausted to eat, drink, dress or even exist. I get the usual joys of fibromyalgia I forget what I’m doing whilst I’m doing it.
I can not plan a journey I can’t even follow verbal (remembering what someone has said) instructions for a journey I can however follow the sat nav but even then I get lost. which is one thing they said you don’t suffer brain fog if you can drive. Yes I drive I drive the same routes only If there’s road works I won’t go If layouts on the roads have changed I won’t go. They also said if I’m pressing the pedals with my feet I’m not in pain? Really stupid stuff like this 😞 I said to them why do you offer mobility cars then because by your statements not a single person with pain should qualify? I been under the crisis team more times than I care to remember they said If I can plan when I’m going to do something then there’s nothing wrong with me I’m waiting only until my son finishes school in a couple of years. I felt the way I do since being a child and nothing is going to change that… so I guess where do I go from here? I’m told i can do an MR but how do I fight it? When the GP has a personal grudge? (Oh I forgot to mention she is one of the partners of the surgery) which makes everything a million times worst 😞

milkybarkid

I literally scored Zero for both. 😞

Alex_Alumni

Hello @milkybarkid thanks for sharing what's happened to you, and I'm sorry it's been causing you such stress. Getting a PIP refusal is never an easy thing to go through, but you're not alone in that. Make sure you give yourself some time to take a break from it all, do something to relax. Then when you feel ready, you can decide what you want to do next. 

There's plenty of excellent advice and information on the steps you can take if you decide to challenge a PIP decision:

• Scope has a clear overview
• Turn2Us also takes you through each stage step by step

As our members have mentioned, any appeal you now make is about explaining how your conditions affect your ability to carry out each of the PIP descriptors. If you can, you need to explain what happens if you try to carry them out, what are the consequences or problems that occur? Try to write down detailed examples for each of them. There's no need to do it all at once, take it in chunks if that's more helpful.

If you feel we can help any further or you're still unsure of anything, please don't hesitate ask.

Alex

ChrisH90

I think the majority of people get refused it at the first attempt, Me included I'm currently awaiting a MR I'm not too hopeful on that decision either, I guess it'll be a tribunal for me.

poppy123456

ChrisH90 said:

I think the majority of people get refused it at the first attempt, Me included I'm currently awaiting a MR I'm not too hopeful on that decision either, I guess it'll be a tribunal for me.

No they don't. The majority of people claim it first time without any problems. Remember, on any internet forum you will mostly only hear the bad stories. If someone's had an award they're happy with, they have no questions to ask so we don't hear their story.