Hi, my name is Sofabound!

Sofabound

Thanks for including me in the Community 👋 

I have moderate/severe ME and have been mostly housebound for 15 years.  I share my life with my ever patient husband and our two fur babies 🐱 🐱

I enjoy making memories, wildlife, sewing, holidays, food, liquid pain relief and ‘walking’ in the rain 😊 

I use a variety of aids including a stairlift, walking stick / crutches and a wheelchair when out of our home.

I look forward to joining in when I can 💙 

chiarieds

Hi @Sofabound - thank you for joining & sharing about yourself. I also look forward to you joining in with the forum when you can.

We have some lovely members that also have ME, which seems a very difficult condition to 'manage.'

Great you have such a supportive husband, which must help so much, & you have some good & varied interests. I think you might enjoy our virtual 'Coffee lounge,' where, amongst other things, we discuss our hobbies & interests, not forgetting our 'fur babies.' I have a very mischievous but loving cat; what do you have?

Here's a link to the 'Coffee lounge,' & do have a look at the 'Kaleidoscope' thread there, which is about hobbies/interests: https://forum.scope.org.uk/categories/coffee-lounge

chiarieds

Hi @tebbie74 - & welcome to the community to you too. Great to have you both here.

chiarieds

Hi @bekindalways - & thank you again, as I always appreciate you are absolutely true to your username, & always look forward to your replies when you can.

I 'think' ME is considered the same as CFS, yet ME is now considered to more accurately describe the severity of what sufferers such as yourself & Sofabound go through, in other words, as with many disorders, the nomenclature changes, or better describes it, rather than almost minimising the symptoms. Please see: https://meassociation.org.uk/about-what-is-mecfs/#Part-1

Dr Shepherd goes further, & I feel he's a great advocate here in the UK for ME sufferers, saying it should more correctly be known as 'Myalgic encephalopathy' rather than 'Myalgic encephalomyelitis'.

chiarieds

Thank you @bekindalways - do so hope you're doing as well as can be. I have the hypermobile type of Ehlers-Danlos Syndrome, the pain of which is most likened to that of Fibromyalgia; throw in other stuff which I have, like neurological problems, & it's not much fun.

Thank you for your kind wishes & hug; it was so great to meet Poppy, who was even nicer, if that's possible, than I'd thought; such a lovely, caring  person.

SueHeath

Welcome to the group @Sofabound and @tebbie74 hope you find the community helpful - informative- funny at times - and a good distraction.

Sofabound

Wow thank you everyone for the warm welcome.  Very much appreciated 🥰

MissMarple

Good to have you in the community @Sofabound Hope you'll find it useful and fun. I'm also housebound due to fatigue. It's only been 1.5 years for me, but it's tough.

Sofabound

@MissMarple thank you x