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We want to hear from you: please tell us about your experience of the online community.

Hi from Rick_Boston! PIP claim started in October last year

Rick_Boston

New to the group. Diagnosed with Cerebral Palsy (slight) in 1982 when I was 8, only found out by chance in November 2021.
Not currently working due to disability,.
PIP claim started in October last year and my telephone assessment is this Thursday.
Good to find an online support group.

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L_Volunteer

Sending you a warm welcome from me too @Rick_Boston. Thanks for joining us. It is great to see you have joined us. How are you finding things at the moment? I hope you are well.

I am wishing you the best of luck with your PIP claim and assessment. Please feel free to let us know how you get on. I think we are a supportive and friendly community and I hope you will find the same!

Alex_Alumni

Hello and welcome @Rick_Boston thanks for joining, glad to hear you claim is underway, and wishing you all the best for it! Please do feel free to explore the forum, and join in with any discussions of interest, you can browse topics in the categories page.

If you've got any questions or worries, or need a hand with anything, don't hesitate to get in touch

Alex

Rick_Boston

I had my PIP telephone assessment this morning. I think it was ok. I was on the phone for 1 hour and 15 minutes. I went through all my neurological problems from Cerebral Palsy, Dyspraxia and PTSD.
They asked which condition causes what symptoms, which I cannot answer as each condition is a part of who I am and has been for a long time (although the social anxiety is mostly caused by PTSD).
I think my main difficulty is that I have been fighting my disability for so long that I have become used to my physical/ neurological difficulties.
So it is hard to explain how my life is different to other people's, if that makes sense.
But they said that I should hear back within 8 weeks.

Danielle_2022

Hiya @Rick_Boston,
Thanks so much for this update -- I have literally just been catching up with your story, so it was perfect timing. I hope that you'll find the community to be supportive. What you said about finding it hard to explain how your life is different to other people's really resonated with me. I think there's a lot to be said for how our brain normalises these things to avoid "making a fuss" or being perceived as a burden, you know? Still, I'm so glad that you're on the right track with claiming PIP and I really hope it makes everything altogether easier for you in the end. In the meantime, we're here to support you.

Social anxiety is never easy, but I like to think that you have achieved something just by posting here! Baby steps

Rick_Boston

Update: I phoned the PIP helpline this morning as it is almost seven weeks since my telephone assessment. The advisor checked my details before placing me on hold while he looked into it.
He came back and said that the person who processed the claim had made a mistake (he said they hadn't ticked a box) while processing the claim.
I said not to worry as mistakes happen, but that the waiting was adding to my anxiety.
He said to call back later in the week for an update. So I might phone back this week or just wait and see.
I am hopeful of a positive outcome from this assessment. But I am prepared to go all the way to tribunal if the various stages fail.

Alex_Alumni

Hi @Rick_Boston thanks for the update, that is a bit frustrating for you, but well done for staying positive.

See how you feel later in the week, and remember the community will be here to support you all the way

I hope you hear more from the DWP soon.

Rick_Boston

My pip letter arrived today, no points on anything. Summary had no resemblance to the telephone assessment, but I have heard that that is very common.
Is the appeal via a letter or is there a form to fill in?

poppy123456

The majority of people claim PIP successfully without any problems. Naturally on any internet forum you'll mostly only hear the bad stories.

For the MR you should put this in writing stating where and why you think you should have scored those points. Include a couple of real world incidents of exactly what happened the last time you attempted that activity for each descriptor that applies. Add information such as where you were, what exactly happened, did anyone see it and what the consequences were.

You can use this form and print it off or write a letter. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/683380/if-you-disagree-with-a-decision-made-by-dwp.PDF

Rick_Boston

My mandatory reconsideration for PIP came back last week with Zero points on everything. I got in touch with a local group that help with benefit tribunals and appeals and they helped me to start the process online the same day.
PIP have until 11th July to respond.
I am hoping to have this all sorted before the end of August as that is when Social Security Scotland take over disability payments for all Scottish claimants. The existing claimants will transfer from PIP to Adult Disability Payment from this date.
ADP is apparently more straightforward to claim, but I want to try and avoid the stress of going through the whole application and appeal process a second time.

Sue_Alumni

Hi @Rick_Boston
I'm sorry that your MR was unsuccessful but that absolutely does not mean that your appeal will be. Its good that you're getting support with the appeal process and let us know how you get on.
Take care

janer1967

Hi there

I think your tinescale is being a bit optimistic personally

You need dwp to respond and often they ars lats in doing so then the wait fir the case to be listed which in England is around 11-16 weeks

Hopefully I am wrong and you get it sorted

Rick_Boston

The date of 11th July is the date on the letter that came confirming that the appeal process has started. It is the date that DWP have to send all the data by, not the date of the actual tribunal.

calcotti

DWP often fail to meet the deadline for providing papers.

poppy123456

Biblioklept said:

calcotti said:

DWP often fail to meet the deadline for providing papers.

Is there any consequence to them for that?

No. They will extend the deadline but if that's still not met the hearing goes ahead as normal.

calcotti

Biblioklept said:

Is that the same for the claimant?

There are no deadlines for the claimant once the appeal is submitted.

Rick_Boston

Update. My tribunal hearing is 21st October, via video link.
I had a telephone call with my advisor this morning and we are hopeful of a positive outcome.
Reading back through the paperwork I noticed that my initial telephone application was 24th September last year.

Tori_Scope

Best wishes for the tribunal @Rick_Boston! It's good that both you and your advisor are feeling positive

Rick_Boston

Had my online video tribunal yesterday morning at 10am. At 2pm yesterday I received a call from my advocate to say that she had received an email from the tribunal advising that was awarded standard rate daily living, no mobility payment though.
This should be back dated to September last year. My next review is in 2024 apparently.
I also had my universal credit work capability assessment call on 11th October. On the 15th October I got word through my universal credit journal that I had been assessed as 'limited capability for work and work related activity ( LCWRA )' and I now receive extra universal credit payments as a result, this was back dated to April this year.
It has been a long and stressful year so far but things are finally looking up.

Tori_Scope

It certainly sounds as though things are looking more positive @rick_boston

Is your advocate happy with the outcome?

Rick_Boston

She seems to be happy with the outcome. I was hopeful of a higher payment, but I am accepting this outcome.
I'm just waiting for the paperwork to arrive and I can check which areas I scored in so that I can discuss other benefit and assistance options with my advocate. Obviously I qualify for a scottish disabled person's bus pass, but other assistance can depend on the points system.