4 year old daughter with ASD refused mobility, advice appreciated

sandyboy

my 4 year old has asd we get high rate dla but been refused mobility on the count she can walk she has no fear at all and will intentionely hurt herself run in the road and a whole range of things which we put on the forms any advice appreciated 

Alex_Alumni

Hi there @sandyboy thanks for joining the community and for your query. To help our members find it I've moved it over to our PIP, DLA and AA category, marked your post as unanswered and changed the title slightly. 

I know the PIP mobility descriptors under moving around are quite specific in that they're about the ability to reliably walk a certain distance, I'm not certain, but I gather this is the same for DLA.

I can recommend have a search of AdviceLocal to find someone to advise you about whether your daughter is able to meet the criteria for that particular section. You could also consult with Citizens Advice, they have information about DLA here.

Hopefully our members can also advise you, but let us know if we can help you further.

Alex

L_Volunteer

Hi @Sandyboy

I just wanted to respond to welcome you to Scope's forum. It is great to see you have joined us. I am really glad to see you have already found the courage to reach out for support. I recognise how much courage it must take to reach out for support.

I am sorry to hear you are not experiencing much luck with DLA for your daughter (at least in terms of mobility). It must be really frightening as a parent that your daughter does not have much of a sense of danger. Unfortunately, DLA is not one of my areas of expertise which means I am hoping someone with more knowledge about DLA (with particular reference to autism and mobility) is able to respond to you soon.

In the meantime, I would just like to highlight that a low sense of danger is quite common amongst many autistic people (especially children and young people), unfortunately. The National Autistic Society has some useful information about this which you might like to explore. If you are interested in exploring this resource further, you can find it at https://www.autism.org.uk/advice-and-guidance/topics/transport/road-safety/parents-and-carers.

I hope this helps! If you have any other questions or want our further support with anything please just let us know 

Alex_Alumni

Hello @sandyboy I'm just wondering how you've been getting on since you last posted here, have any of the resources we've shared been helpful?