Hi, my name is brian1958! I've just found out I have ataxic cerable palsy — Scope | Disability forum
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Hi, my name is brian1958! I've just found out I have ataxic cerable palsy

brian1958
brian1958 Scope Member Posts: 11 Listener
edited March 2022 in Cerebral palsy
I am 63,and just found out I have ataxic cerable palsy.

Comments

  • Tori_Scope
    Tori_Scope Scope Campaigns Posts: 12,488 Disability Gamechanger
    Welcome to the community @brian1958 :) How are you doing today? 

    Thank you for sharing with us that you've recently been told you have ataxic cerebral palsy (CP). I can imagine that receiving a new diagnosis a little later in life might have brought up some challenges- how have you been feeling about it?

    I've moved your post into our CP category, which I'd encourage you to have a look through. You may also be interested in attending Scope and CP Sport's virtual CP Cafe. I believe the next one is on Monday :)
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  • Richard_Scope
    Richard_Scope Posts: 3,615 Scope online community team
    Hi @brian1958
    A very warm welcome! I have to say that, that is the latest diagnosis for Ataxic Cerebral Palsy (CP) that I have ever been aware of.
    How has life been, and how do you feel about your diagnosis?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • brian1958
    brian1958 Scope Member Posts: 11 Listener
    It's nice to know at last what is wrong.Interesting times ahead.
    I try to look on the funny side,bumping g in to things,spiĺing my drinks,it's not going to get the better of me!
  • Danielle_2022
    Danielle_2022 Community member Posts: 266 Pioneering
    Hi there @brian1958,
    Just wanted to drop by and thank you for sharing this story with us. I’m so glad that you have finally received a diagnosis. I can imagine that it comes with lots of complex feelings, but it’s good to hear that you’re feeling positive. I find that making jokes helps me, too! I’m sure you’ll find a home here in the community and I’ll look forward to seeing you around. If you need any support or advice around accessing services etc., please don’t hesitate to ask :)
    Community Volunteer Host (she/her) with a passion for writing and making the world a better place for disabled people to exist.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Welcome to the community @brian1958 and thank you for telling us a bit about yourself. I admire the attitude of trying to remain positive and see the lighter side of certain aspects of your condition, it's not for everyone but I'm glad that it is helping you manage.
    Online Community Coordinator

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  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
    Hi @brian1958 Welcome to the group i am certain you will enjoy the chats/advice people can offer,
    l bet that was a big shock but at least you now have the answer to some of your mishaps, i'm sure once you've got your head around things you will benefit greatly from the forum.

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