If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is brian1958! I've just found out I have ataxic cerable palsy
Options
brian1958
Scope Member Posts: 17 Connected
I am 63,and just found out I have ataxic cerable palsy.
Comments
-
Welcome to the community @brian1958 How are you doing today?
Thank you for sharing with us that you've recently been told you have ataxic cerebral palsy (CP). I can imagine that receiving a new diagnosis a little later in life might have brought up some challenges- how have you been feeling about it?
I've moved your post into our CP category, which I'd encourage you to have a look through. You may also be interested in attending Scope and CP Sport's virtual CP Cafe. I believe the next one is on Monday
-
Hi @brian1958
A very warm welcome! I have to say that, that is the latest diagnosis for Ataxic Cerebral Palsy (CP) that I have ever been aware of.
How has life been, and how do you feel about your diagnosis?Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
It's nice to know at last what is wrong.Interesting times ahead.
I try to look on the funny side,bumping g in to things,spiĺing my drinks,it's not going to get the better of me! -
Hi there @brian1958,
Just wanted to drop by and thank you for sharing this story with us. I’m so glad that you have finally received a diagnosis. I can imagine that it comes with lots of complex feelings, but it’s good to hear that you’re feeling positive. I find that making jokes helps me, too! I’m sure you’ll find a home here in the community and I’ll look forward to seeing you around. If you need any support or advice around accessing services etc., please don’t hesitate to askCommunity Volunteer Host (she/her) with a passion for writing and making the world a better place for disabled people to exist. -
Welcome to the community @brian1958 and thank you for telling us a bit about yourself. I admire the attitude of trying to remain positive and see the lighter side of certain aspects of your condition, it's not for everyone but I'm glad that it is helping you manage.
Online Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
Hi @brian1958 Welcome to the group i am certain you will enjoy the chats/advice people can offer,
l bet that was a big shock but at least you now have the answer to some of your mishaps, i'm sure once you've got your head around things you will benefit greatly from the forum.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 587 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 738 Transport and travel
- 31.7K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.