APPG Report into the barriers for adults with Cerebral Palsy on achieving full life participation

Richard_Scope

We are delighted to share with you that the All-Party Parliamentary Group (APPG) on Cerebral Palsy, which Scope sponsored together with Adult CP Hub, has today published the final report into the barriers for adults with Cerebral Palsy on achieving full life participation in healthcare and the workplace.   Commenting on the launch of the report Co-Chairs, Mary Kelly Foy MP and Paul Maynard MP said:  ‘Cerebral Palsy is a lifelong condition, and we hope that this report emphasises the crucial need to refocus attention on barriers to achieving full life participation for those living with it…. we also must not let the pandemic distract from long-standing problems that need to be addressed.” You can read an accessible version of the full APPG report and a PDF version

The report was created based on the lived experience of the adult CP community, clinicians, and academic experts,  We thank all of you for your time and for your bravery when speaking about your lived experiences. It is that lived experience that makes this report powerful and hard to dismiss.

Within the report, the issues faced by the adult CP community are highlighted as both complex and solvable. depending upon the essential collaboration between health, social care and employment.  Parliamentarians call on NHS England, social care, education, and employment specialists to agree to a new national specification for adult Cerebral Palsy to commission dedicated specialist services across the new 42 Integrated Care Systems (ICS) in England. Devolved governments should put in similar measures in their respective health systems.  Other proposals contained in the report include: Guaranteeing adults living with Cerebral Palsy annual medical reviews to better assess their evolving health and care needs. Ringfencing funding for the Integrated Care Systems (ICS) to develop specialist services. Enhancing employment rights for adults with Cerebral Palsy to better reflect the varied, fluctuating, and complex nature of their conditions. Creating a new online information hub for employers to better understand the needs of members of the adult Cerebral Palsy community in their workforces. This is just a starting point for addressing the unmet needs and health inequalities of the adults living with Cerebral Palsy, the largest group in the UK living with a lifelong condition. Scope also feels that many other disabled people would benefit from positive policy change too. We urge the Government to act now to improve the lives of adults with Cerebral Palsy. Help us by emailing your local MP about the report and how it can change the lives of so many in the CP community.

VANGOUGH

IF OTHER GROUPS WANT ONE THEY SHOULD ORGANISE THEIR OWN. SCOPE CAN BE TOO CHARITABLE AT TIMES AT THE COST OF CPS

Jo_2022

Thank you for highlighting this topic @Richard_Scope 👏🏻. This will send a powerful message that people living with Cerebral Palsy have a right to have their needs meet.