A fight for everything

MumofRaff

Hi

My 10 year old son is severely disabled, non verbal, has epilepsy, cannot walk or sit unaided, is doubly incontinent and is type 1 diabetic.

There has never been an update of the EHCP - the only one in place is 7+ years old.

Since it was written, we have had all night care withdrawn (2018), he has had his diabetes diagnosis. Additionally, although it states my son is entitled to short breaks, we've only ever had hospice stays as our short breaks (he is life limited) and nothing arranged by the council. The hospice give us 6 nights per year.

I have got to the end of my tether and am pushing for residential schooling. My question however is in relation to the EHCP - it's a legally binding document - if social and health have not been providing what's stated in it as it's either been withdrawn or was never given on the first place, what clout does this give me in my request for residential schooling? We have a meeting to discuss my request, which the LEA will be attending.

Many thanks in advance

Nina

chiarieds

Hi @MumofRaf - & welcome to the community. I wonder if IPSEA (Independent Provider of Special Education Advice) may be able to help. Please see: https://www.ipsea.org.uk/health-and-social-care