A fight for everything

MumofRaff

Hi

My 10 year old son is severely disabled, non verbal, has epilepsy, cannot walk or sit unaided, is doubly incontinent and is type 1 diabetic.

There has never been an update of the EHCP - the only one in place is 7+ years old.

Since it was written, we have had all night care withdrawn (2018), he has had his diabetes diagnosis. Additionally, although it states my son is entitled to short breaks, we've only ever had hospice stays as our short breaks (he is life limited) and nothing arranged by the council. The hospice give us 6 nights per year.

I have got to the end of my tether and am pushing for residential schooling. My question however is in relation to the EHCP - it's a legally binding document - if social and health have not been providing what's stated in it as it's either been withdrawn or was never given on the first place, what clout does this give me in my request for residential schooling? We have a meeting to discuss my request, which the LEA will be attending.

Many thanks in advance

Nina

Libby_Alumni

Hello @MumofRaff ,

Welcome to the community and thank you for your post.

It sounds as if you're going through a very challenging time at the moment and I'm sorry to hear that you and your son are not receiving the appropriate support. I'm not too experienced within this area, however, I'm sure some of our members will be able to help you moving forward. I have moved your comment into our education category and have tagged it as unanswered, in the hope that it will gain more attention.

If you do have any further questions or queries, then please do let us know.

Take care now and I hope things get sorted for you soon.

Libby

Libby_Alumni

Hello @MumofRaff,

Following on from my last post, I have found some useful information on Scope's website about if a school is not following a EHCP. I know your query is more to do with social and health, but there's some helpful information within the post, that might support you with your current situation too.

Libby

chiarieds

Hi @MumofRaf - & welcome to the community. I wonder if IPSEA (Independent Provider of Special Education Advice) may be able to help. Please see: https://www.ipsea.org.uk/health-and-social-care