Hi, my name is mistyreba! I have hereditary multiple exostoses. Is this known a disability?

mistyreba

Hi there everyone. I have hereditary multiple exostoses.  I have had this all my life. I have had numerous operations to remove bone. I am currently suffer severe pain with this illness and I would like to know if this is known a disability. 

janer1967

Hi and welcome to the community 

The definition of a disability is a physical or mental health impairment that significantly affects your ability to carry out day to day tasks that lasts for 12 months or more 

A diagnosis or condition doesn't mean you are deemed disabled as everyone is affected differently by their condition 

chiarieds

Hi @mistyreba - & welcome to the community. My understanding is that a disability is anything that literally dis-ables you, so a disorder that limits your ability to do certain acts of daily living for example. Severe pain is certainly disabling. May I ask if you're thinking about applying for a benefit such as the Personal Independence Payment (PIP)?

Alex_Alumni

Hello there @mistyreba and welcome to the community, I hope you'll find it a supportive and welcoming place. Have our members replies helped answer your query, or is there anything you're still unsure about?

Please do feel free to have a look around the forum, you can browse our categories and join in with discussions if you'd like, or head to the virtual coffee lounge to get to know our members, there's a few games there, and more casual chat.

If you've got any questions or need a hand with anything then let us know, and I look forward to seeing you around

Alex

mistyreba

Thank you Alex. 😊 

mistyreba

Most days are a struggle for me dealing with depression and anxiety and also having multiple exostoses.  Pain is really bad. Wakens me up from my sleep .

Tori_Scope

A warm welcome to the community from me too @mistyreba  

I'm sorry to hear that things are quite difficult for you at the moment. You've mentioned having surgeries to help manage your condition- are you receiving any other support to help you get the pain under control? Is your doctor aware that it's affecting your sleep? 

I'm also sorry to hear that you're experiencing depression and anxiety at the moment. Are you receiving any support to help you manage these conditions?