Chronic Pain Petition

clairebear1989
clairebear1989 Online Community Member Posts: 1 Listener
edited April 2022 in Neurological impairments and pain

We are a large group of disabled people who suffer from chronic pain. #ChronicPainisNotNICE

Chronic Pain can take so many things away from you. Yet, pain relief & similar treatments can provide many patients with some quality of life. 

The National Institute for Health and Care Excellence (NICE) has drastically reduced the treatment options for Chronic Pain Patients - pain relief medications are now not approved alongside many more. 

NICE provides clinical guidelines for the NHS. 

To End this Cruelty Please Sign the Parliamentary Petition Via https://petition.parliament.uk/petitions/611150 
(All Signatures prior to March 15th do not count) 





Comments

  • clairebear1989
    clairebear1989 Online Community Member Posts: 1 Listener




    We are a large group of disabled people who suffer from chronic pain. #ChronicPainisNotNICE

    Chronic Pain can take so many things away from you. Yet, pain relief & similar treatments can provide many patients with some quality of life. 

    The National Institute for Health and Care Excellence (NICE) has drastically reduced the treatment options for Chronic Pain Patients - pain relief medications are now not approved alongside many more. 

    NICE provides clinical guidelines for the NHS. 

    To End this Cruelty Please Sign the Parliamentary Petition Via https://petition.parliament.uk/petitions/611150 
    (All Signatures prior to March 15th do not count) 

    For more information on the campaign please visit - 


  • clairebear1989
    clairebear1989 Online Community Member Posts: 1 Listener
    We are a large group of disabled people who suffer from chronic pain. #ChronicPainisNotNICE

    Chronic Pain can take so many things away from you. Yet, pain relief & similar treatments can provide many patients with some quality of life. 

    The National Institute for Health and Care Excellence (NICE) has drastically reduced the treatment options for Chronic Pain Patients - pain relief medications are now not approved alongside many more. 

    NICE provides clinical guidelines for the NHS. 

    To End this Cruelty Please Sign the Parliamentary Petition Via https://petition.parliament.uk/petitions/611150 
    (All Signatures prior to March 15th do not count) 

    For more information on the campaign please visit - 



  • chiarieds
    chiarieds Online Community Member Posts: 16,688 Championing
    edited April 2022
    Hi @clairebear1989 -  the National Institute for Health & Care Excellence (NICE) has actually differentiated between chronic primary pain, i.e. that with no known underlying cause, & chronic secondary pain, where there's a reason for such chronic pain, which they published a year ago. Please see:  https://www.nice.org.uk/guidance/NG193
    As someone who suffers from chronic pain, due to an underlying diagnosis (chronic secondary pain) I appreciate that these guidelines are more about those who suffer from chronic primary pain, so feel that thus far NICE's guidelines are indeed appropriate. Not everyone who suffers chronic pain if this is secondary is denied helpful pain medication, so feel that saying, 'pain relief medications are now not approved alongside many more,' is inaccurate.


  • chiarieds
    chiarieds Online Community Member Posts: 16,688 Championing
    edited April 2022
    Hi @clairebear1989 -  just replying to your similar post. The National Institute for Health & Care Excellence (NICE) has actually differentiated between chronic primary pain, i.e. that with no known underlying cause, & chronic secondary pain, where there's a reason for such chronic pain, which they published a year ago. Please see:  https://www.nice.org.uk/guidance/NG193
    As someone who suffers from chronic pain, due to an underlying diagnosis (chronic secondary pain) I appreciate that these guidelines are more about those who suffer from chronic primary pain, so feel that thus far NICE's guidelines are indeed appropriate. Not everyone who suffers chronic pain if this is secondary is denied helpful pain medication, so feel that saying, 'pain relief medications are now not approved alongside many more,' is inaccurate.

  • chiarieds
    chiarieds Online Community Member Posts: 16,688 Championing
    Hi @clairebear1989 -  the National Institute for Health & Care Excellence (NICE) has actually differentiated between chronic primary pain, i.e. that with no known underlying cause, & chronic secondary pain, where there's a reason for such chronic pain, which they published a year ago. Please see:  https://www.nice.org.uk/guidance/NG193
    As someone who suffers from chronic pain, due to an underlying diagnosis (chronic secondary pain) I appreciate that these guidelines are more about those who suffer from chronic primary pain, so feel that thus far NICE's guidelines are indeed appropriate. Not everyone who suffers chronic pain if this is secondary is denied helpful pain medication, so feel that saying, 'pain relief medications are now not approved alongside many more,' is inaccurate.

  • Tori_Scope
    Tori_Scope Scope Posts: 12,461 Championing
    Hi @clairebear1989 :) Thanks for posting your petition! I've merged your threads together, as it can get a little confusing when something's posted multiple times. 
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    clairebear1989

    The National Institute for Health and Care Excellence (NICE) has drastically reduced the treatment options for Chronic Pain Patients - pain relief medications are now not approved alongside many more. 

    Sorry but i also disagree with that. Having suffered myself with chronic pain conditions for more than 10 years. I've taken many many different pain medications in that time and still take them daily.
    I won't be signing the petition but i wish you good luck.

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