Hi everyone
I am 62 and my husband is 62
my husband and myself have always worked.
I got fibromyalgia in 2009 and ME in 2011 before that I was physically fit always at the gym working out, looking after my daughter who is 34 now, I met my husband in 2000 online we married in 2007.
in 2012 I got diagnosed with osteoporosis of my spine, was able to still potter about in the house/ garden etc go for short walks which we liked, taking photos so I was functioning. In April 2021 it all changed I woke not able to able to move my legs, it’s a long story so will try shorten it, paramedic’s said it was fibromyalgia, I said it wasn’t I had flares, but lasted a few days this was different, had severe extreme back pain and back spasms never had the amount of pain ever like this, got diazepam it helped,I couldn’t see a doc cos over covid so just kept giving me medication which was making me worse as most medication affects my stomach even with tablets that protects the lining.
the pain was 24/7 and into may when I had a x ray said no fractures everything normal, through the summer the spasms lessened and the back pain was manageable but I was on the list to see physio, nothing triggered it as my husband who was working did the housework and made dinners so I never did heavy lifting, I was told by physio in may it’s fibromyalgia flare,I also had a numb thigh on my left side and tingling in my stomach and numb toes on my right leg for three weeks but again out down to flare up then in November it started again with spasms in my back the back pain extreme and I could hardly move, I can take diazepam so was given that it took edge off it.
December was a blur the pain was off the scale I don’t remember much apart from 24/7 pain and on Christmas Day I rang 111 in tears saying I can’t cope, they said ring your doc for an appointment I did as not open till four days later, still wouldn’t see me but upped medication to codeine which I was told to take four times a day, paracetamol 4 times a day and diazepam twice a day, I didn’t know what I was doing and no one listening apart from saying it’s a big flare up.
saw physio in December said same and saw physio in January said exercise and moving about will make it better!
In February I saw a different physio who said she didn’t think it was fibromyalgia and should have an MRI scan which I had two weeks ago, the pain from February got worse as I fell on a rug in our house, it was a bad fall but I didn’t see anyone as I couldn’t wait hours in A&E so I never got checked, I went head first into the living room wall I slide across I cut my left knee and my left elbow and my right wrist did something to it as it’s painful every day but I can write with my left but I am right handed, my wrist has never been checked it’s very painful.
my head was painful as it was the right side of my head it was like that for a week it didn’t knock me out and my back has been extreme since and I need a walking a stick to do small steps in the living room and never used one before, but in January I got one from the hospital and a grabber, I am waiting on a OT assessment as I rang social services to see what help I can get as docs useless.
my results of the MRI are as follows
I have wear and tear of my neck and it’s affecting a disk.
I have Wedge fractures all over my back he said from the osteoporosis but I had a fall remember I told you so I think from that as well as was a bad fall, he said I have cracks in the middle of my back could be over the osteoporosis.
Lower back nerves bulging out he told me which ones but I can’t remember all of them.
Multiple levels of degenerative changes in my back and neck.
Lower back two discs bulging out but not touching nerves.
Inflammation of the sacroiliac joint.
I am thinking now as my right hand been sore since February hard to use it that it’s a fracture as they didn’t check that but I think it is.
So will ask doc about that.
I have to have another MRI done and blood tests but MRI of the sacroiliac joint as they don’t know why I have inflammation
I think this was from the fall as never had anything like it before. We both feel depressed and fed up.
it’s just ongoing and know one knows what is going on.
I miss taking photos, going for walks and doing the gardening.
my daughter is getting married in five weeks and it was supposed to be 2020 but with covid it was changed to this year and I haven’t been able to help and have so many appointments and just not coping at all.
sorry for the long post.
