fibromyalgia pain — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

fibromyalgia pain

Options
deb74
deb74 Community member Posts: 814 Pioneering
in Chronic pain and pain management
My doctor keeps fobbing me off. He knows I have got fibro as he diagnosed it. Last time I went to see him it was a complete waste of time. He said was I looking for reassurance and did I want him to refer me to the pain clinic which he had done before and it was a complete waste of time. I am now in agony and sometimes struggle to walk without crutches. He is one of those doctors who is happy to let you struggle on. I am not sure if there is any point going back to see him. Does anyone have any tips on coping with fibro without prescription painkillers.
· Share on FacebookShare on Twitter

Comments

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Options
    Hi @deb74

    Sorry to hear that your doctor isn't being very helpful. Have you considered going to a different GP? 
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it.
    · Share on FacebookShare on Twitter
  • deb74
    deb74 Community member Posts: 814 Pioneering
    Options
    Hi @Ross_Scope. I changed surgeries as my the doctor at the other surgery accused me of making it up. It was my new doctor that diagnosed me from what I have heard the attitude of most doctors is that you  should just go away and deal with it. My doctors surgery is closed at the moment due to them not having any doctors so even if I did want to see another dr I don't know when the surgery will be open again.
    · Share on FacebookShare on Twitter
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Options
    I see, thanks for clarifying @deb74, it's a shame that attitudes from GPs towards your condition haven't been great. 

    Have you been in touch with a specialist charity like FMA UK to see if they can provide any support and advice?
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it.
    · Share on FacebookShare on Twitter
  • deb74
    deb74 Community member Posts: 814 Pioneering
    Options
    Hi @Ross_Scope.Thanks I  will get in touch with them.
    · Share on FacebookShare on Twitter
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Options
    @deb74

    No worries, hopefully they can be of use to you. This isn't a subject I have any personal experience of myself, but I hope that other members might be able to lend their insight.
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it.
    · Share on FacebookShare on Twitter
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    Options
    Hello @deb74

    Thanks for reaching out for support. Personal experience of fibro here!

    Honestly, your management of fibro without a prescription is possible but it will be symptom based.

    For me, heat works wonderfully but I know for others with fibro cold is better and ice is ideal for them  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
    · Share on FacebookShare on Twitter
  • deb74
    deb74 Community member Posts: 814 Pioneering
    Options
    Thanks @L_Volunteer. I will try heat rather than cold as |I feel worse if I get cold
    · Share on FacebookShare on Twitter
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    Options
    Good luck @deb74. Yes, if you can rule out what makes you feel worse, that's a great start. It helps you to identify what might help. Please feel free to keep us up to date. We are here for you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
    · Share on FacebookShare on Twitter
  • deb74
    deb74 Community member Posts: 814 Pioneering
    Options
    Thanks. @L_Volunteer
    · Share on FacebookShare on Twitter
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    Options
    You are welcome @deb74. It is the very least you deserve. How are you today? I hope you are well but if you need anything, please don't hesitate to let us know  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
    · Share on FacebookShare on Twitter
  • deb74
    deb74 Community member Posts: 814 Pioneering
    Options
    Hi @L_Volunteer. I am ok today thank goodness!
    · Share on FacebookShare on Twitter
  • chiarieds
    chiarieds Community member Posts: 16,103 Disability Gamechanger
    Options
    Hi @deb74 - there's some links from the Physiotherapy Pain Association, which you may find helpful: https://ppa.csp.org.uk/content/links-people-living-pain

    · Share on FacebookShare on Twitter
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    Options
    Glad to hear you were ok yesterday @deb74 :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
    · Share on FacebookShare on Twitter
  • deb74
    deb74 Community member Posts: 814 Pioneering
    Options
    Thanks @chiarieds
    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.