fibromyalgia pain

deb74
deb74 Online Community Member Posts: 816 Pioneering
in Neurological impairments and pain
My doctor keeps fobbing me off. He knows I have got fibro as he diagnosed it. Last time I went to see him it was a complete waste of time. He said was I looking for reassurance and did I want him to refer me to the pain clinic which he had done before and it was a complete waste of time. I am now in agony and sometimes struggle to walk without crutches. He is one of those doctors who is happy to let you struggle on. I am not sure if there is any point going back to see him. Does anyone have any tips on coping with fibro without prescription painkillers.

Comments

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hi @deb74

    Sorry to hear that your doctor isn't being very helpful. Have you considered going to a different GP? 
  • deb74
    deb74 Online Community Member Posts: 816 Pioneering
    Hi @Ross_Scope. I changed surgeries as my the doctor at the other surgery accused me of making it up. It was my new doctor that diagnosed me from what I have heard the attitude of most doctors is that you  should just go away and deal with it. My doctors surgery is closed at the moment due to them not having any doctors so even if I did want to see another dr I don't know when the surgery will be open again.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    I see, thanks for clarifying @deb74, it's a shame that attitudes from GPs towards your condition haven't been great. 

    Have you been in touch with a specialist charity like FMA UK to see if they can provide any support and advice?
  • deb74
    deb74 Online Community Member Posts: 816 Pioneering
    Hi @Ross_Scope.Thanks I  will get in touch with them.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    @deb74

    No worries, hopefully they can be of use to you. This isn't a subject I have any personal experience of myself, but I hope that other members might be able to lend their insight.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Hello @deb74

    Thanks for reaching out for support. Personal experience of fibro here!

    Honestly, your management of fibro without a prescription is possible but it will be symptom based.

    For me, heat works wonderfully but I know for others with fibro cold is better and ice is ideal for them  :)
  • deb74
    deb74 Online Community Member Posts: 816 Pioneering
    Thanks @L_Volunteer. I will try heat rather than cold as |I feel worse if I get cold
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Good luck @deb74. Yes, if you can rule out what makes you feel worse, that's a great start. It helps you to identify what might help. Please feel free to keep us up to date. We are here for you  :)
  • deb74
    deb74 Online Community Member Posts: 816 Pioneering
    Thanks. @L_Volunteer
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    You are welcome @deb74. It is the very least you deserve. How are you today? I hope you are well but if you need anything, please don't hesitate to let us know  :)
  • deb74
    deb74 Online Community Member Posts: 816 Pioneering
    Hi @L_Volunteer. I am ok today thank goodness!
  • chiarieds
    chiarieds Online Community Member Posts: 16,688 Championing
    Hi @deb74 - there's some links from the Physiotherapy Pain Association, which you may find helpful: https://ppa.csp.org.uk/content/links-people-living-pain

  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Glad to hear you were ok yesterday @deb74 :)
  • deb74
    deb74 Online Community Member Posts: 816 Pioneering
    Thanks @chiarieds

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