Attitude of people when you have a speech problem — Scope | Disability forum
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Attitude of people when you have a speech problem

katieNew
katieNew Community member Posts: 8 Listener
in Disability rights and campaigning
Hi All

I have cerebellar ataxia and slur when speak.  Does anyone else have problems, especially with nurses, who think you are drunk and write it in your medical records?  Ward Clerks too seem to shout and become very condescending.  

Even when I disclose my physical disability it makes no difference.
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Comments

  • Biblioklept
    Biblioklept Community member Posts: 3,899 Disability Gamechanger
    I don't have speech problems but I know and have seen this happen too!! Can you challenge it to have it removed from medical records? That's outrageous really!!!!
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  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Sorry to hear this @katyNew, that does sound like a terrible thing to go through, I can't imagine how it must feel. Hopefully something can be done about it.
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  • Richard_Scope
    Richard_Scope Posts: 3,553 Scope online community team
    My speech becomes worse when I'm tired. I have also been accused of being drunk and refused entry to venues etc. 
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  • katieNew
    katieNew Community member Posts: 8 Listener
    It must be worse for a younger person.  I tend not to go out.
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  • Siwheels73
    Siwheels73 Scope Member Posts: 746 Pioneering
    Any comment on medical notes can be challenged, and I definitely would! 

    I went to School with numerous people with CP related speech issues and it really winds me up when people do not take the time to listen a little closer as most of my friends with Cerebral Palsy also had a wicked, self-deprecating sense of humour.

    After school, I did work experience setting up voice equipment at a Special School for the pupils who needed it. The first time they used it, their faces were pictures!
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  • katieNew
    katieNew Community member Posts: 8 Listener
    I complained to the GP practice and they added my objection and said the nurse was mortified by her mistake.

    It took ages, I know we were in a pandemic but did not think they prioritised the issue.

    You are really funny and smart too!

    Thanks ☺️



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