Do I inform dwp

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mookie
mookie Online Community Member Posts: 51 Connected
in PIP, DLA, ADP and AA
Hi everyone hope you are well ,I am on stardard daily living for transplant and fibromyalgia , recently have been diagnosed with asthma acute allergic and now under physiotherapy could anyone tell me do I need to inform dwp and will it start a new assessment ,or a move to UC 

Thank you mookie
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Comments

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    PIP isn't about a diagnosis so on this basis then no you don't. You would only need to report changes if your conditions have changed so you could score more points for a higher award. Even then you shouldn't report any changes until you've got some expert advice from an agency near you.
    No, you won't move to UC because PIP isn't part of UC.
  • chiarieds
    chiarieds Online Community Member Posts: 17,127 Championing
    Hi @mookie - as PIP is not about any diagnoses, then you don't need to inform the DWP, as that wouldn't be seen as a change of circumstances. However, if you have a look at the PIP descriptors here: https://www.cambridgeshire.gov.uk/asset-library/Personal-Independence-Payment-Descriptors-and-Scores-April-2021.pdf    then see if you think you might gain sufficient points to increase your award, then you might consider reporting a change of circumstances.
    As you thought, this would mean you would be sent a new claim form for PIP, & an assessment would follow. It would not mean you'd have to move onto UC.
    Be aware that your current award may change, so it would be an idea to get some expert advice about this first. Please look here: https://advicelocal.uk/   choosing 'Welfare benefits' from the drop down menu.
  • mookie
    mookie Online Community Member Posts: 51 Connected
    Thank you so much ,it has affected my health again ,has made it very difficult to move
    my back and draw breath when walking ,asthma diagnosis hasn't help , allergies just make chest very tight and ribs hurt like hell , 
    Thank you I will go to cab 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    That sounds really difficult @mookie. Is there anything that usually helps you feel better when you feel this way? I know different things work best for different people.

    I hope you are feeling better soon. Good luck with the cab and please feel free to let us know how you get on and if we can do anything else to support you  :)
  • mookie
    mookie Online Community Member Posts: 51 Connected
    Thank you yes ,I will let you know what can say x
  • mookie
    mookie Online Community Member Posts: 51 Connected
    Hi again everyone ,having a week of it ,doctors have told me I have proteinuria now ,I'm worry sick I've already had a liver transplant and on strict diet ,does anybody know much about it ,and can I do anything to change the protein level ,after asthma check 

    Mookie  xx
  • mookie
    mookie Online Community Member Posts: 51 Connected
     got asthma diagnosis last week x
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    That sounds really frustrating @mookie. Not least because you've already had a liver transplant and are on a strict diet.

    Unfortunately, we can't provide medical advice. Your best point of call will be the medical professionals involved. However, the NHS has a resource you might find helpful  :)
  • mookie
    mookie Online Community Member Posts: 51 Connected
    Thank you l volunteer and teddy bear 12 ,I will look ,yes I'm hoping it just a blip but we go on ,hey xx
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hello @mookie I can understand why that's worrying news, and I'm sorry to hear that you're feeling stressed. 

    I'm not too familiar with proteinuria myself, and even if I was, I would encourage you to speak to your doctor, a dietician, or other specialist about what you can do. Unfortunately no one on the forum is a medical adviser, so it's always advisable to speak with the professionals involved in your care.

    You might like to read more about it the condition on the National Kidney Foundation website. Do keep us up to date with how you're getting on, and please don't hesitate to reach out if you need to, as it's important to look after your mental health too :)
  • mookie
    mookie Online Community Member Posts: 51 Connected
    Thank you Alex ,yes I will have a reviews on Friday,so I'm hoping my lovely doctor can tell me more after repeat testing ,speak soon y
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Good luck with your review/speaking to your doctor @mookie. It sounds like you find your doctor supportive which is really positive.

    Please feel free to keep us in the loop. We are all here for you. You don't have to go through this, or anything else, alone if you don't want to  :)
  • mookie
    mookie Online Community Member Posts: 51 Connected
    Thank you l volunteer for you lovely word ,yes will let you know maybe could help some else in the future x
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    I'm pleased to hear your doctor is supportive @mookie and yes, this discussion could help a lot of people in future- that's a very positive thought :) 
  • mookie
    mookie Online Community Member Posts: 51 Connected
    Yes Alex ,I'm very lucky I had my doctor before I was seriously ill ,while I was on transplant list and now after transplant ,all of my doctor's nurse and health care assistant s and and cleaners all were and are great,all hospital worker ,even the lovely tea lady we talked all the time in hospital really kept me going through the dark times even the priest !! God bless and thank n.h.s will let you know how I get on 

    Once again thank you x
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing

    Thanks for your response @mookie. It is positive that you had your doctor before you were seriously ill and you have found the health team, cleaners, tea lady and priest very helpful.

    How are you feeling at the moment? I hope you’re well but if you need anything or have any questions, we are here for you.

    Looking forward to hearing how you get on. Wishing you all the best  :)

  • mookie
    mookie Online Community Member Posts: 51 Connected
    Hi lv 
    I have a fantastic team ,I'm very blessed x I feel anxious as still waiting for next results but I put my faith in my lord and my family are wonderful. I feel well considering,but I'm not going to grumble.,how are you feeling today 

    I'm watching the tennis today very relaxing x I will let you know I I'm waiting for appointment for doctor xx
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    I am really glad to hear you have a fantastic team @mookie. It is really important that you feel supported.

    I am hearing that you feel anxious as still waiting for the next results. Is there anything that helps you when you are feeling anxious?

    It is really positive that you put your faith in your lord and your family is wonderful. Do these things help you when you are feeling anxious? 

    Please feel free to grumble if that's what you need. We are all here for you. Glad to hear you have been relaxing watching tennis. Have you had your appointment with the doctor yet? please feel free to let us know how you get on.

    I am good thank you! Thank you for asking, that's really kind of you  :)

  • mookie
    mookie Online Community Member Posts: 51 Connected
    Hi lv ,no ,had to repeat test but heard nothing I have appointments Thursday ,but I have just got home and notice have very small amount of odema pitting on ankle ,now Im very worried ,not sure if its my liver ,or kidney now but a least I have an appointment xx
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Hello @mookie. Thanks for your response.

    How frustrating that you had to repeat the test but heard nothing. Hopefully your appointments Thursday will help.

    Unfortunately, we don't provide medical advice so I can't comment as to what it might be. However, if we can do anything else to help, please don't hesitate to let us know  :)

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