MS and coronavirus — Scope | Disability forum
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MS and coronavirus

Maurice123
Maurice123 Community member Posts: 103 Courageous
What would you say to somebody who has MS and is terrified of catching COVID. As a result is afraid of entering any inside rooms preferring to stay outside apart from her own home?
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Comments

  • Maurice123
    Maurice123 Community member Posts: 103 Courageous
    @Teddybear12
    Hi Teddybear
    I am afraid I was somewhat unsympathetic. I pointed out that in the main hospital in Exeter nobody wore a mask but if a patient requested it a member of staff was happy to oblige. Surely if top surgeons and nurses no longer wear a mask the disease is overrated ans no worse than the common cold. I feel the media are the main problem wanting scare stories all the time. I entirely agree with you Teddybear we are all going to die sometime. Enjoy life while you can.

  • Biblioklept
    Biblioklept Community member Posts: 4,180 Disability Gamechanger
    This is so difficult @Maurice123 and I think you need to view it like they've said they're scared of dying, that's essentially what it is. What can anyone say to reassure someone of that?

    I was paranoid about Covid back when the first news starting appearing in December 2019 and by March 2020 I was in full-blown panic. 

    Like @Teddybear12 I'm classed as CEV so was convinced I would catch it and die. I've had it twice now and I'm still alive. It's pretty wild that even though I basically never leave my home and have contamination OCD so was always extra careful even before Covid, I've still managed to catch it twice. 

    Is her preferring to be outside etc causing her any upset or problems? If not does it matter that she prefers to be and feels safer that way? 
  • Maurice123
    Maurice123 Community member Posts: 103 Courageous
    @Biblioklept
    I find your reasoning very sensible Sarah. You seem to be a very logical person. I think that your reasoning told you that you had to be very careful when the virus was discovered. However you clearly read all you could about the effects. By March 2020 you decided that you were not going to let Covid dictate your life. I have always enjoyed good health apart from having colds frequently. Thats all they were though. I know that having a cold was quoted as a symptom but I knew that my cold was just that. I have never had any fear of Covid although I always took any injections that I was offered. I have had four to date. All this has formulated my views - mind you I probably did not endear myself by saying that the Royal Devon and Exeter hospital no longer considered Covid to be dangerous and nobody wears a mask unless requested by a visitor. If everybody from the surgeons down no longer thinks that masks are necessary and they have access to the best information should the rest of us still be panicking? I think also that I was irritated by her insistence on outdoor activities such as walking, cycling, sea swimming all the year round were great, but she was terrified of going into any enclosed space.
    Both your and @Teddybear12 views are sane and sensible. My acquaintance apparently has MS but she should have acted the way that you both did ie analysing the situation and then assessing the dangers later as compared to leading a normal life. I am very pleased Sarah that you are treating life as worth living and have not given in to the virus. Congratulations both. Maurice                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                      
  • Dreadwitch
    Dreadwitch Community member Posts: 3 Listener
    @Teddybear12
    Hi Teddybear
    I am afraid I was somewhat unsympathetic. I pointed out that in the main hospital in Exeter nobody wore a mask but if a patient requested it a member of staff was happy to oblige. Surely if top surgeons and nurses no longer wear a mask the disease is overrated ans no worse than the common cold. I feel the media are the main problem wanting scare stories all the time. I entirely agree with you Teddybear we are all going to die sometime. Enjoy life while you can.

    Surgeons wear masks, they did before covid and do now because they could kill someone if they spread any infection during surgery. 
    But someone with MS is right to be concerned if they're on disease modifying drugs. My daughter is in those drugs, caught covid and spent 6 weeks on a ventilator because the meds completely wipe out her immune system. She was so I'll we were told to prepare for the worst. Thankfully she recovered but not until she had a severe relapse, back in hospital for another 3 weeks while being pumped full of steroids. 
    She got covid again a few months ago and was called in for antiviral treatments. Without that she will probably have ended up ill again. Due to her MS she can't even be vaccinated. 
    So anyone taking precautions has my backing, it's their life and their health, I really don't think anyone has the right to insist they behave in a way that makes them feel comfortable. 
    I have lots of health issues that mean covid is more than a cold, I've managed to avoid it until now when I went to my sons wedding. I'm still testing positive 2 weeks later, I'm extremely ill. I can't do anything, I have been in bed for a week and while I have the occasional short time that I can sit up and feel like I'm not at deaths door the majority of the time I'm too poorly to even turn the TV on. It's not helped by a lack of good food and no money to buy any kind of medicines, I called my GP surgery who said I can't get anything prescribed even when I explained that I have no money to buy anything or the ability to go out to a shop if I did. 
    Yes for some covid is a cold that they get over in a few days, for others it's a serious illness that makes us very ill, for others it's deadly. 
  • Catbird
    Catbird Community member Posts: 1 Listener
    I completely respect her view & feel exactly the same. I caught Swine Flu years ago which damaged my lungs & caused bronchiectasis. Covid isn't flu or a cold. It's a multisystemic epithelial disease which can affect one or all organs & your brain. It also damages your immune system.  Most people don't know this or care to know it. Proper HEPA ventilation in indoor locations makes a big difference but not many places have it unfortunately so meeting outside is sensible. It's like Russian Roulette -some will have it mildly,others severely & there's no way of knowing until you catch it. For me it almost certainly means more lung damage & more disability along with many other people too. For others not even any symptoms or just mild ones. I think it's important to respect each person's individual circumstances & instincts about their condition because nobody can be certain until they're in that position. 
  • Maurice123
    Maurice123 Community member Posts: 103 Courageous
    edited May 2023
    @carbird I totally understand your feelings. you say you have health issues. Could these have been passed onto your daughter? In my case I went into hospital having avoided Covid and was put in a ward with two patients who were coughing their lungs out. Yes i now had Covid. I have no idea what happened to those two patients. A week later when I was due to be discharged at 9pm the nurse said I had Covid. I was immediately put in an isolation ward
    and had a very bad night. Next morning I was fine. That was the end of Covid or whatever it was. [Removed by moderator - Misleading content] I have had a sort of bronchitis or hay fever since I caught it last April year. |It does nor bother me. It has nor gone away, but I have not had a bad cold or the obvious effects of a cold during the last year. [Removed by moderator - Misleading content].
  • Community_Scope
    Community_Scope Posts: 881 Scope online community team
    edited May 2023

    Moderator note:

    This post contained disproven claims regarding COVID-19 vaccines and has been removed. Please refer to official government/NHS information on COVID-19 vaccines.

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