Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.

Anyone here with schizophrenia?

Options
rish
rish Community member Posts: 62 Courageous
I am aware of a diagnosis called schizoaffective, and the docs go between telling me I have that and / or a mood disorder. I am uncertain what I really have  and there is no clarity on what I’m being told.

If you have schizophrenia, are your symptoms chronic even with meds? I seem to be fine with meds, and my moods cause me the most issues. My first episode of psychosis was in 2010, and later in 2020 (but this was because the docs took me off meds and onto an antidepressant called Sertraline).

Comments

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Options
    Hello @rish and thank you for making this post.

    Sorry to hear that you aren't getting much clarity about your situation, it can't be easy. Have you expressed to your medical team that you are finding it hard not being clear about what it is that you have? Perhaps they would come to understand how it is making you feel and would be able to provide further clarity. 

    It's good that you are fine with meds, and I hope that aside from the lack of clarity your medical team is providing you with all the support you need to manage your mental health. Do ensure that you keep in contact with them and let them know if you ever feel as though you need more or different support :) 
    Online Community Coordinator

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it.
  • rish
    rish Community member Posts: 62 Courageous
    edited July 2022
    Options
    Unfortunately because I rarely see the same consultant, it is difficult to get a diagnosis. Still, at least there is someone from there who calls me every few weeks to check up on me these days. I will try to ask for a doctor who will be able to see me on a more regular  basis though. Thank you for your response @Ross_Scope
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    Options
    You are welcome @rish. Our responses are the very least you deserve,

    It sounds tough that you rarely see the same consultant. It seems like you feel this is a barrier to getting a diagnosis too. 

    It sounds really positive, and supportive, that you at least have someone from there who calls you every few weeks to check up on you these days.

    Hopefully, you will be able to see a doctor who will be able to see you on a more regular basis. If we can do anything else to support you, please don't hesitate to let us know  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • rish
    rish Community member Posts: 62 Courageous
    Options
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    Options
    You are welcome @rish. It is the very least you deserve. If we can do anything else to support you, please don't hesitate to let us know. We are all here for you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • HKW08
    HKW08 Community member Posts: 12 Listener
    Options
    Hi Rish, I don’t know how old this conversation is but here’s hoping you’ll see it! 
    Schizoaffective disorder is what im
    being looked at for now, I was originally diagnosed bipolar a number of years ago, but have had persistent psychotic episodes which have had some effect with medication but not as much as they were hoping, I’ve also been tried on many medications and finally been settled on olanzapine but with the last episode I had the MH team now heavily intervened because of its intensity and the fact I’m on the highest dose of olanzapine and are now talking of changing medication again to suit schizophrenia rather than bipolar as they now think I’m in between but presenting more on the schizophrenia side. However, I’ve been fortunate to have one set care coordinator (although that’s now due to change in October to a new one!) and have seen the same two psychiatrists throughout. 

    So to answer your question, even on medication I have visual and/or audio hallucinations, severe paranoia where I think someone is watching me all the time, bad anxiety which comes from that too. It has left me unable to leave the house for sometimes weeks or months when the episodes are bad.

    I also get the moods but not so often I have found this is more controlled by my medication. 
    Are you on a mood stabiliser?  
  • Tori_Scope
    Tori_Scope Scope Posts: 12,505 Disability Gamechanger
    Options
    Thank you for sharing that with us @HKW08 :) I hope that @rish sees your comment, and can benefit from your insight!

    It sounds as though things have been quite tough for you, but that you're on the right path to being able to manage your symptoms. I hope that the transfer over to the new care coordinator goes well. How are you feeling about it?
    National Campaigns Officer, she/her

    Sign our petition calling on politicians to stop demonising us
  • HKW08
    HKW08 Community member Posts: 12 Listener
    Options
    I’m a little worried about the transition to a new care coordinator as the one I have now is fantastic! And I find it hard adjusting to new people so it’ll take some time, but hopefully they will be just as good as the one I have now. 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    Options
    I can hear how you are feeling worried about the transition to a new care coordinator @HKW08. Would anything, in particular, make this feel more manageable for you at the moment?

    Wishing you the best of luck! Please don't hesitate to let us know if we can do anything to support you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • rish
    rish Community member Posts: 62 Courageous
    Options
    HKW08 said:
    Hi Rish, I don’t know how old this conversation is but here’s hoping you’ll see it! 
    Schizoaffective disorder is what im
    being looked at for now, I was originally diagnosed bipolar a number of years ago, but have had persistent psychotic episodes which have had some effect with medication but not as much as they were hoping, I’ve also been tried on many medications and finally been settled on olanzapine but with the last episode I had the MH team now heavily intervened because of its intensity and the fact I’m on the highest dose of olanzapine and are now talking of changing medication again to suit schizophrenia rather than bipolar as they now think I’m in between but presenting more on the schizophrenia side. However, I’ve been fortunate to have one set care coordinator (although that’s now due to change in October to a new one!) and have seen the same two psychiatrists throughout. 

    So to answer your question, even on medication I have visual and/or audio hallucinations, severe paranoia where I think someone is watching me all the time, bad anxiety which comes from that too. It has left me unable to leave the house for sometimes weeks or months when the episodes are bad.

    I also get the moods but not so often I have found this is more controlled by my medication. 
    Are you on a mood stabiliser?  
    Firstly, sorry for the late response to your post. I do not currently take a mood stabaliser but I would like to give it a try if the consultant recommends one to me. I wish you all the best with your new care co-ordinator. Unfortunately I do not ever see the same psychiatrist more than once which is a shame. I don't understand why they keep leaving. Because of this I am left without an accurate diagnosis.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    Options
    That sounds really frustrating @rish! If we can do anything to help please don't hesitate to let us know  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.