Hi, my name is Frugirl58! I have Fibromyelgia I just don't know what to do

Frugirl58

Hi I am 58 I have Fibromyelgia I have been on oramorph for a few years it's is the only thing that has helped my pain . A couple of months ago I was told I had to come off because of research that says it doesn't  help long term chronic pain.  I pointed out it did help me but it made no difference I was made to switch the tablet equivalent if oramorph.  Since going on them they are no where near as effective as the liquid I told my Dr thus she was very patronising . I am coming off it slowly but my pain levels have shot through the roof I am in pain constantly  . I have been told that no other medication will be given until the opiates is  out of my system . I am at my wits end and feel like I have gone back several years to before I was given oramorph.  I just don't know what to do . Xxxxx

SueHeath

Good Morning @Frugirl58 Welcome to our fantastic group.
I am sorry to hear about the problems your having at the moment.
Being in a lot of pain is no joke, unfortunately we are not able to give our own views on medication, we are not Doctors, but normal people with our own health issues. 
When your ready have a look around the site, you may find members dealing with the same problems you have,
Have a look at Categories.
Any problems just ask some one is bound to be on site to help you.

I look forward to seeing you around.

Sue_Alumni

Good morning @Frugirl58 and welcome to our online community.

It sounds as if you're really struggling at the moment and dealing with chronic pain is really really hard, especially if you feel unsupported by your GP. Have a have a look around our forum and you may find some discussion threads that resound with you and there is one about chronic pain which you may find useful. We can't give advice about medication but we can share our experiences and support one another. 

Do tell us a bit more about yourself if you would like to. Do you have any interests or hobbies that you would like to share with us ?

MillieMay

Could you maybe ask to be referred to a pain clinic. Your GP could assist hopefully.

I’m so sorry your in so much pain.
i sympathise as I have chronic pain.

L_Volunteer

Thanks for sharing this with us @Frugirl58. I can hear how tough it is to be withdrawn from something which you have found helpful because others disagree. If we can do anything to help please don't hesitate to let us know. We are all here for you 

Chronic pain can be difficult to deal with, can't it @MillieMay? How do you manage your pain? With fibromyalgia, I find heat helpful but I know for others ice helps the most. Others will find an even broader range of things to help them - I truly believe it is different for everyone 

MillieMay

Hi,
I find heat helps me as does my meds sometimes, distracting myself with hobbies and resting.

SueHeath

That sounds a bit like me @MillieMay but mine is cold ha ha.