Mild cerebral palsy

Yvette48

@Hannah_Scope Thankyou so much, its really good to know that there are group like this to help through all the bad times. I've had it explained to me in simple terms but I think because I was panicking I lost focus so I will try to keep a clear head for when I actually have the appointment with the neurologist. Thankyou once again. ☺️

Yvette48

@Alex_Scope I have started to write things down that I don't understand and questions I want to ask so I can be prepared. I've been for a lovely 1 hour massage today as it helps with the pain and anxiety I get, this is something I will be doing on a regular basis now too. 😊

Alex_Alumni

That's great, and I'm so glad a message helps to ease any pain and anxiety you feel, that must make a big difference  

Yvette48

Hi everyone, I just wanted to ask if anyone on this forum suffers with leg tremors. Ive never really suffered much with them but now they are an almost daily occurance. Could this be due to cerebral palsy and aging?. 

Richard_Scope

Hi @Yvette48
I have leg spasms daily too. They occur due to the tightness of the muscles. Stretching really helps. 

Yvette48

@Richard_Scope Thankyou for replying. Im not sure if they are spasms or tremors but they come on quite suddenly mostly when I'm walking which knocks me off balance. I've only recently started to get them so my physio has given me a mobility walker because I tend to fall quite a lot. 

Alex_Alumni

How are you finding the walker @Yvette48?

I get spasms in my legs too, most often when I'm trying to sleep at night, but sometimes in the day too.

Yvette48

@Alex_Scope. The walker does help a bit but I'm going to get one with a seat on and four wheels. The NHS one is okay but it's a little squeaky. I mostly get them when I'm walking, they start in my foot but also affect my legs so thats what makes me lose my balance. Not noticed that I get them when I'm lying down only tightening sensations like my muscles are tensing. The tremors I get cause mostly my right leg to shake but can aslo affect my left too. I'm also still annoyed that I wasn't given any therapy when I was diagnosed because I've read that if you get the proper care as you are growing it can benefit you more when you get older. I explained in my first post that I was diagnosed at three but found out through my medical records in my 20's. I was never told by my supposed mother that I even had it. 

Alex_Alumni

A walker with a seat and four wheels sounds like the best option @Yvette48 and I'm not surprised you're annoyed at the lack of support through your childhood, I would be too!

I hope that you feel better supported now, I think whatever you can do, even if it's at a later stage, will be a benefit   

Yvette48

@Alex_Scope. Thankyou to you and everyone else who has took the time to help me. I don't know of any other support networks available in my area so this has been a very good place to get all my feelings out. Once again Thankyou. 

Cplife

@Alex_Scope
hi I have what they glass as mild cerebral palsy although as I’m getting older I don’t feel like it’s mild anymore I’ve got a 4 wheel walker with a seat it’s a game changer I got my own seat at the bus stop it’s also good when I get tired mine was given to me by an Ocupational Therapist I love my walker really helps me much better than a waking stick. My leg gives on me a lot. I feel a lot safer using it. 😊

Alex_Alumni

That's great to hear @Cplife, having the right aids and equipment can make a real difference to our quality of life