Hi, my name is lndbeyaz0! My situation has got worse. Should I report a change of circumstances?

lndbeyaz0

Hi sorry but I have a question I get pip the low one but unfortunately my circumstances change and they found I have hlab27 illness and I have to have injection or few taplest and also my situation is got worse should I report them of I do will they cut my money till they make decision please help me about this thank you 

poppy123456

Your current award continues until a decision is made on the change of circumstances. 

lndbeyaz0

Well should I report them or not as I said my condition is got worse and its getting worse but I'm afraid of their might cut my current benefit 

poppy123456

A worsening of condition doesn’t mean you’ll automatically score more points for a higher award. If you do this, you’ll be sent more forms to fill in and return with all your evidence. Another assessment is most likely because most people have them. 

I can’t tell you whether you should report the changes because I don’t know any about how your conditions affect you. 

Before doing anything else you should get
some expert advice from an agency near you. https://advicelocal.uk/

Tori_Scope

Welcome to the community @lndbeyaz0 Thanks for joining us!

I'm sorry to hear that your situation has worsened. Would you feel comfortable telling us a little more about that, and how you've found receiving your new diagnosis? 

I hope that poppy123456 has been able to clear that up for you a little. It can definitely be worrying when you're concerned that your benefits may be reduced or taken away. Have you had a look on advicelocal.uk yet? 

lndbeyaz0

Hi thank you for your response 

I applied for it last winter and after a long phone call, they gave me the small one but after that my condition started to deteriorate further and now I can't use my arms, shoulders, feet, eclipses in my back and aches in my back. In the last tests, I had hla-b27 peripheral spondyloarthritis in my body and inflammation has covered my whole body and bones and is getting worse.  This disease is worse than inflammatory rheumatism and they wanted to give me an injection, but I preferred pills. I was afraid of the side effects of the injection and now I was unable to do anything and they said that this disease could cause me to hunched over and twist my back completely. They said that I could not use my hands and could not walk.  I'm not sure should I report it or not 

poppy123456

That's something only you can decide. Before doing anything else i'd advise you to get some expert advice and use the link posted above to see what advice agency is local to you.

lndbeyaz0

Hi Sorry to bother you but I don't know what to do. When they told me that I was entitled to this money, when I applied, they had written that they would contact me in May and how it went about my situation. But still no news. Do I have to call them or wait for them?

poppy123456

Contact you in May about what exactly? Did you report changes to your health condition?

lndbeyaz0

When I applied I am entitled to receive this money until 2024, but they wrote that they would contact you to see if there is a change in the situation in May 2023, but I haven't heard anything so should I contact them or wait 

poppy123456

You need to wait. It doesn't tell you they will contact you in May, what it says most likely is they will contact you sometime after May 2023. You will at some point receive review forms to fill in and return with all your supporting evidence.