Living with BAM — Scope | Disability forum
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Living with BAM

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Tigger67
Tigger67 Community member Posts: 1 Listener
Hi, I have a condition called Bile Acid Malabsorption and I was diagnosed about 18 months ago.  I also have osteoporosis in the spine and osteopenia in the hip and neck.

I am finding it very difficult to cope with day to day living with having severe stomach cramps, urgently needing the toilet, terrible fatigue and joint pain.

I have recently had to reduce the hours that I work because I was so exhausted but I would be very interested to here from any fellow IBD sufferers to know what help, diet recommendations and benefits I could claim to hopefully make my life easier.

Thank you 🙂

Comments

  • poppy123456
    poppy123456 Community member Posts: 54,266 Disability Gamechanger
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    For benefits, you can use a benefits calculator to check entitlement to Universal Credit. As it's a means tested benefit, if you live with a partner you claim as a couple and your joint circumstances will be taken into consideration. If you have savings/capital of more than £16,000 you're excluded from claiming. https://www.entitledto.co.uk/benefits-calculator/Intro/Home?cid=537996ba-693c-4724-946d-d7f0e0a056cc
    If your earnings are less than £16 x NMW/Week you can report a health condition, supported by a fit note within 7 days of that. This will then start the work capability assessment process off and you should be referred within 29 days. If you earn more than this then a referral can't be made unless you're recieving a disability benefit such as PIP or DLA. https://www.gov.uk/health-conditions-disability-universal-credit
    There's also Personal Independence Payment (PIP) it's not means tested so other income/savings/capital do not affect the amount you maybe entitled to. It's not about your ability to work, or a diagnosis. It's how those conditions affect you against the 12 PIP activities. You can read more information here. https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/
    For your health conditions, i'd advise you to speak to your GP.





    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
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    Good morning @Tigger67 welcome to our great group.
    Hope you are well this morning.
    When you are ready have a look around the site, you can join in on any of the chats/threads/debates/games/arts any problems just ask, some one is bound to be on line.
  • gorjuss
    gorjuss Community member Posts: 2 Listener
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    Hi everyone. , I was looking for somewhere to talk too others that understand what I’m going through and it seems that I’ve found the right place x
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    Hello @gorjuss

    I'm so glad you feel you have found some support here :) Are you also someone who has been diagnosed with BAM?
    Hannah - She / Her

    Online Community Coordinator @ Scope

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  • Ziva
    Ziva Community member Posts: 2 Listener
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    Hi everyone 
    I have a question.
    Has anybody had Bowel surgery  for Severe Bile Acid  Malabsorption ???
    Unfortunately no medications  have worked for me and now the Consultant has referred  me to a Surgeon.  As I am virtually  household  through  it.
    If you have, what surgery  was it and what's the outcome.??
    Would really appreciate  help on this matter. 
    Thankyou all for reading. Xx

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