My daughter has recently been diagnosed with autism ,but what now.

gina1983

Hey I'm feeling a bit lost.my daughter (12) has recently been diagnosed with autism and O.D.D.
It has taken years to get her diagnosed.
I had the zoom call with some paediatricians and psychologists to confirm and then received a letter stating it. But my worry is that, that's it.they are not helping me with any of her behaviours , or lack of sleep, constant tantrums, school avoidance .My house is so stressed out every day because my daughters eruptions and melt downs are getting worse.do I keep calling them for advice.the GP has put her on the camhs list but said it could be a very long wait.what else can I do to help my beautiful girl and the rest of my family.
Thankyou

L_Volunteer

Hey @gina1983. Welcome to Scope's forum. It is great to see you have joined us. How are you doing?

Thanks for already finding the courage to reach out to us. Apologies that no one has responded to you yet. 

I can hear that although your daughter has finally received diagnoses, you feel you have not received adequate support. 

It sounds like this is causing your house to be stressed out every day, especially as your daughter's eruptions and meltdowns are getting worse. 

I think one of the first and most important things to do is identify the triggers for your daughter's eruptions and meltdowns. It is often only when we identify the triggers that we can reduce them.

I hope this at least semi-helps. Please do feel free to let us know if you want to talk things through further with us or need any further support. 

Some additional resources you might find helpful include:

• The National Autistic Society
• Lanc
• NHS - Autism: https://www.nhs.uk/conditions/autism/autism-and-everyday-life/help-for-families/ ODD: https://www.cntw.nhs.uk/services/oppositional-defiant-disorder-odd-conduct-disorder-and-challenging-behaviour/

Take care for now and we will look forward to hopefully hearing from you again soon