parent and child with suspected ASD

eclecticdodo

Hi, My son has an EHCP which states that techniques for ASD are effective (or something like that) but no formal diagnosis.  And I think my own issues fit ASD also.  I guess my question is whether others have found themselves in a similar situation, questioning themselves after their children are diagnosed, or having a diagnosis and wondering about your parents?  

Tori_Scope

Welcome to the community @eclecticdodo  Thank you for joining us. I love your username!

From my understanding, this is quite a common experience. Many people unfortunately miss out on getting a diagnosis when they're younger, and get diagnosed later on in life after their children have been diagnosed. 

Is looking into getting a diagnosis for yourself something you'd be interested in? 

Would you feel comfortable telling us a little more about the issues you're currently facing? 

eclecticdodo

I did think about looking into diagnosis for myself but cost does not allow at the moment and I understand an NHS assessment is unlikely.  

For my son, he was assessed at age 4/5 and found to be borderline because they identified potential attachment issues due to my poor mental health in his early years and they basically stopped looking.  We've been told reassessment is extremely unlikely.

My son's main issues are sensory (textures and noise), fixed ways of thinking, inability to read and understand people, difficulty regulating emotions in busy or chaotic situations, and food restrictions.

My issues are also sensory (noise), difficulty reading and understanding people, self harm, obsessive behaviours and interests.  

It's further complicated by my own complex trauma and my son's resultant generational trauma (I think those are the terms).  But certainly I have friends with similar experiences who do not have the same issues so it makes me think there is more to it.

Hannah_Alumni

Hello @eclecticdodo

I've come across your post, and I wanted to reach out and ask how you are getting on?

Did you decide whether to take the route of getting a diagnosis? 

You left your last comment with thinking "there is more to it". As someone who has children in the family with Autism, although I do not know a lot, they are on very different ends of the spectrum. I know that assessments are usually done via the NHS after they reach 6 and go through CAMHS. I've popped a link if you click here. It's the Young Minds webpage with a guide to CAMHS if you feel reading up may help you. You said in your previous post you were told a reassessment is unlikely, but that will be for your child's GP to decide. Maybe speaking with them, if you haven't already, may be beneficial too.

We're all here to help and hope to hear from you.