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Fibro

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Annteak
Annteak Community member Posts: 3 Listener
I've had fibro for a few yrs now but was only diagnosed about 16 months ago . My Consultant said it is Caused by Trauma as is the case for me . And he said stress is a trigger . Don't know if anyone else agrees ?? 

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  • Tori_Scope
    Tori_Scope Scope Posts: 12,499 Disability Gamechanger
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    Hi @annteak :) I don't have fibromyalgia myself, but my understanding is that stress can be a trigger in some people. We had someone make a similar post to you recently, so you and @Agoraphobe might like to connect.

    Are you receiving support to help you work through your trauma?

    National Campaigns Officer at Scope, she/her

  • diliz
    diliz Community member Posts: 3 Listener
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    Annteak said:
    I've had fibro for a few yrs now but was only diagnosed about 16 months ago . My Consultant said it is Caused by Trauma as is the case for me . And he said stress is a trigger . Don't know if anyone else agrees ?? 
    I have had  Fibro for a number of years and I can confirm by personal experience and through support groups that trauma, including mental/emotional are massive triggers, as is stress.

    I found CBT very helpful in dealing with past trauma. Take Care. 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,981 Disability Gamechanger
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    I have fibromyalgia and can only say I agree and empathise! How are you feeling about everything at the moment @Annteak

    I can hear you were only recently diagnosed with fibromyalgia and it might be a lot to process at the moment. This is a space where you can talk about it though if you wish  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Dumplin360
    Dumplin360 Community member Posts: 2 Listener
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    Annteak said:
    I've had fibro for a few yrs now but was only diagnosed about 16 months ago . My Consultant said it is Caused by Trauma as is the case for me . And he said stress is a trigger . Don't know if anyone else agrees ?? 
    Hi, I've had fibro since around 2016 and can confirm that stress exacerbates it.  My medics think mine has come from extended severe pain resulting from radiotherapy burns over a number of months.  The cancer is 10 years gone, for which I am more than thankful, but the after-effects are ever-present.   The frustrating thing about fibro is that it often makes no sense.  I can be reduced to tears by very sudden or very loud noises, even if the loud noises gradually increase - it somehow turns into muscle pain, perhaps from the sudden tension as my body goes into startled mode.  I wake up daily feeling as though someone used a hammer on - get this - the inner side of my elbow joints, for heaven's sake.  How does that make sense?  Most mornings the mist and pain lifts by about 11, but can suddenly descend again if I receive unexpected bad news or one of my family is in a bad mood - which I suppose is stress.  I hope you manage to pick up some helpful information about it now that the long process of diagnosis is done.  Take care,
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,981 Disability Gamechanger
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    I can really hear the conflict there @Dumplin360 - with being thankful for the cancer being 10 years gone but also the after-effects being ever-present. 

    I can really relate to fibro being frustrating, especially as it often makes no sense. In terms of the muscle pain, I can lightly turn my head and all of a sudden it feels like a strain. 

    It is often not as drastic as fibro tries to tell us it is! And I agree about it being exacerbated by stress. Thanks for sharing your experiences with us though.

    Your experiences will be invaluable for anyone experiencing anything similar. It is always lovely to know we don't have to face this, or anything else, alone if we don't want to.

    Please don't hesitate to let us know if there's anything else we can do to support you, even if that's just listening to you.

    Take care for now and we will look forward to, hopefully, hearing from you again soon  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • katz23
    katz23 Community member Posts: 1,895 Pioneering
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    Hi @Annteak, I agree that Trauma can be the cause of Fibro. I’ve had Fibro for 14 years now and was diagnosed 12 yrs ago.

    I can also confirm that stress including my mental and emotional state of mind triggers big flares.
  • Adie_Hawkeye
    Adie_Hawkeye Community member Posts: 141 Pioneering
    edited February 2023
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    Hi @Annteak I have had Fibro myalgia for well over ten years it definitly comes from trauma and stress is one of the worst triggers and can make your fibro see to be the worst pain ever including one lady said to me it is worse than giving birth? unfortunately there is not enough science that can help just yet. What we do know is that a trauma that you have gone through that could be from your youth has altered the chemicals in your brain. This then causes a flair up which is often far worse than your normal fibro symptoms, then there are all the other nasty side effects like fibro fog and some one will name someone and I know them but can not  think of there name or face and it frustrats the hell out of me. then there is a very common link between Fibro and Iritable bow syndrome, long lasting headaches, the list just goes on and on. It has taken me the best part of the ten plus years for me to be able to come to terms with it. three levels of fibro mild, medium, and severe I have the severe and when it starts I may as well be paralised I cannot move I am constantly in pain of course the fatigue literally cannot get out of bed which would be alright if I could sleep but my PTSD if that wants to join in the fun then I am knackerd and still cannot sleep for the night terrors will start but it does not mean you will be in my boat and no disrespect Ann I truly hope you are not. Take care I am on and of here quite a lot you could always send me a message in my profile and I will get back to you asap.
    Hi @katz23 I had no idea that you had fibro as well 
  • katz23
    katz23 Community member Posts: 1,895 Pioneering
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    Hi @Adie_Hawkeye

    Sorry to hear that you are suffering so badly 😔

    Unfortunately stress is playing a big role at the moment… 
  • WelshBlue
    WelshBlue Community member Posts: 770 Disability Gamechanger
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    I would concur with the trauma and fibro.  PTSD and Fibro are hand in glove for me now

    The specialists tell me that a few car crashes and forestry accidents, sexual trauma and physical violence as a child are the cause of mine.  All makes sense ...for years I lived with this and continued my life working hard and playing hard.

    What I don't get is how/when the mind/ body decides enough is enough.  My Fibro' manifested 6 years ago as the most excruciating pain all over my back ... I'd never felt anything like it and for all the hospital stays I've had that was saying something

    The PTSD kicked in even later ... I've got the acceptance part, it's the understanding why 'then' and not sooner that leaves me intrigued.

    @Adie_Hawkeye ... I feel you mate, that could be me writing that.  I try to keep smiling as long  as I can, not always easy but it helps me
  • Adie_Hawkeye
    Adie_Hawkeye Community member Posts: 141 Pioneering
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     Hi @WelshBlue Thank you for your comments it means a lot to me
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