HOW DO LIVE WITH CHRONIC PAIN — Scope | Disability forum
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HOW DO LIVE WITH CHRONIC PAIN

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ems123
ems123 Scope Member Posts: 2 Listener
I WOULD LOVE TO UNDERSTAND HOW PEOPLE LIVE WITH CHRONIC PAIN IM FINDING IT DIFFICULT IM COPPING BUT ITS HARD WORK ANY ADVICE WOULD BE GREAT 

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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hello there @ems123 and thanks for posting today, I'm sure the community members have plenty to say on their own experiences of chronic pain and how they manage living with it. 

    What are you finding most difficult at the moment, maybe we can help? :)

    Alex
    Online Community Coordinator
    Scope

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  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    edited October 2022
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    Pam Hello, how are you coping today?

    Gosh, that sounds really difficult to live with. I had a period of a few years living with chronic pain and it was hard, perhaps more-so emotionally than physically some days. How is your mood? And have you had a GP medication review lately? I wonder if they could look at the pain medication you're taking and offer any alternatives?

    Likewise, a referral to a pain management clinic by your GP would be worth exploring if it's something you haven't looked at yet. Pain clinics are there to give you coping strategies and offer a range of treatments and services. Here's a link to the NHS page on 'How to get help for your pain' which discusses pain clinics further down, if you scroll a little.

    There are some specialist pain organisations who could offer some insight too. Taken from the above link, they are:
    Keep us posted with how you get on. And if you ever need a vent or a listening ear, our community is about 24/7. Take care.
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  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
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    Good morning @ems123 welcome to our fantastic group.
    Sorry to hear about your relentless pain, there are a lot of us that suffer in the same way.
    We do have a thread in categories, that has lots of chats about managing pain.
    If you don't mind me asking, do you know what is causing your pain, i take it your under the doctors with your problem.
  • ShirleyW
    ShirleyW Community member Posts: 355 Pioneering
    edited October 2022
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    I've suffered with joint pain from osteoarthritis for about 30 years.

    Apart from painkillers I've found that yoga and meditation can help.

    Cold and hot compresses can be useful too.

    Sometimes, when the pain has been very intense, say after surgery I try the following self taught technique:

    Usually I lie down, close my eyes and think myself into the pain itself.   It appears to be red in my mind.  I try to follow it down and down and if I can hold the concentration it sometimes goes away or I sometimes fall asleep. 

Brightness

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