Hi, my name is Uphar! - worried about son — Scope | Disability forum
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Hi, my name is Uphar! - worried about son

Uphar
Uphar Community member Posts: 1 Listener
edited October 2022 in Cerebral palsy
Hi , My son is 4 years old and he is still not walking independently. he is though walking taking support. He is disgnosed with perinatal ventricular insult in MRI. Doctors says he has CP. besides walking he is also not talking. we are doing physio therapy from last one and half years but no solid improvement is seen so far.

We are so worried about him, will he walk independently and live a normal life in future. 

Comments

  • Adrian_Scope
    Adrian_Scope Testing team Posts: 10,599 Scope online community team
    Good afternoon @Uphar and welcome to the community. I've moved your discussion over to our Cerebral palsy category so that our CP information specialist @Richard_Scope will see it when he's working this week.

    Hopefully he can offer some useful advice to you.
    Community Manager
    Scope
  • forgoodnesssake
    forgoodnesssake Community member Posts: 498 Pioneering
    Hi Uphar.  I see that you've also mentioned that your son is not talking either.  My own son cannot walk (a few steps with support) and so uses a powered wheelchair or gets pushed when necessary.  He also cannot talk and so uses either a computer based communication aid, or a spelling sheet.  He went to mainstream school and is now at University.  I am not saying this to boast, but to illustrate what can be possible even for someone who needs a wheelchair and who cannot talk.  Personally I think that getting some communication in place is actually more important than walking, and especially so for going to school.  If you haven't got a speech and language therapist then you should ask for a referral as soon as possible and you will also find some useful information here www.communicationmatters.org.uk.  I do understand what a lot you will have to think about and how hard that can be and so you might also find some good support from www.1voice.info.  They provide networking & suport to  families with a child or young person who can't use regular speech and so uses Alternative & augmentative communication (AAC)  they also have a FB group which can be very useful.  best wishes, Jenny

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