FND

Megmogwiththedogs
Megmogwiththedogs Online Community Member Posts: 4 Listener
edited November 2022 in Talk about your impairment
Hey just looking for a penpal with FND, i have been recently diagnosed with FND and would just like to know someone who understands it, we can help each other out with tips on how to deal with the symptoms. I am always here for a chat. 

Comments

  • Tori_Scope
    Tori_Scope Scope Posts: 12,464 Championing
    edited November 2022
    Welcome to the community @Megmogwiththedogs :) 

    Thank you for sharing with us that you have FND! I don't have FND, but I'm hoping another member who does will find and comment on your post soon. 

    Here are a few members who I seem to recall have some experience with FND, who may like to connect with you:
    How are you feeling about your recent diagnosis?
  • Megmogwiththedogs
    Megmogwiththedogs Online Community Member Posts: 4 Listener
    Thankyou @Tori_Scope. I appreciate this a lot. 

    I am okay with diagnosis, just adjusting to the new lifestyle 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    You are welcome @Megmogwiththedogs. It is the very least you deserve and it sounds positive that you are okay with the diagnosis.

    You have mentioned adjusting to the new lifestyle. Would you like to tell us a little more about what that looks like for you at the moment?

    We are all here for you and listening to you if you would like to share more with us  :)
  • SSparkles
    SSparkles Scope Member Posts: 7 Listener
    Hi Tori,
    I have also just been diagnosed and did a very similar post on here a few weeks back. 
    How are you doing?
    For me the diagnosis helped me manage my symptoms. 
    Here if you want to chat. 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,464 Championing
    edited November 2022
    I'm good thank you @ssparkles :) I don't live with FND myself, but it'd be good to hear about your experiences! I'm sure members like @Megmogwiththedogs would find that helpful.
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    What kind of things are you experiencing with FND?
  • SSparkles
    SSparkles Scope Member Posts: 7 Listener
    Non epileptic seizures, speach, muscle and mobility issies. But as I have Osteoathritus and Fibro they co-exist. How does it impact you?
  • bluefox
    bluefox Online Community Member Posts: 647 Empowering
    http://www.neurosymptoms.org

    Will explain the condition better than I can.

    I experience non-epileptic attacks, dissociative seizures (it has many names), functional tics, tremor, jerks and spasms and dizziness. Sometimes I have difficulty walking too and my balance is poor.  

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