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FND
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Megmogwiththedogs
Community member Posts: 4 Listener
Hey just looking for a penpal with FND, i have been recently diagnosed with FND and would just like to know someone who understands it, we can help each other out with tips on how to deal with the symptoms. I am always here for a chat.
Comments
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Welcome to the community @Megmogwiththedogs
Thank you for sharing with us that you have FND! I don't have FND, but I'm hoping another member who does will find and comment on your post soon.
Here are a few members who I seem to recall have some experience with FND, who may like to connect with you:
How are you feeling about your recent diagnosis? -
Thankyou @Tori_Scope. I appreciate this a lot.
I am okay with diagnosis, just adjusting to the new lifestyle -
You are welcome @Megmogwiththedogs. It is the very least you deserve and it sounds positive that you are okay with the diagnosis.
You have mentioned adjusting to the new lifestyle. Would you like to tell us a little more about what that looks like for you at the moment?
We are all here for you and listening to you if you would like to share more with usCommunity Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her.
Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only. -
Hi Tori,
I have also just been diagnosed and did a very similar post on here a few weeks back.
How are you doing?
For me the diagnosis helped me manage my symptoms.
Here if you want to chat. -
I'm good thank you @ssparkles I don't live with FND myself, but it'd be good to hear about your experiences! I'm sure members like @Megmogwiththedogs would find that helpful.
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What kind of things are you experiencing with FND?
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Non epileptic seizures, speach, muscle and mobility issies. But as I have Osteoathritus and Fibro they co-exist. How does it impact you?
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http://www.neurosymptoms.org
Will explain the condition better than I can.I experience non-epileptic attacks, dissociative seizures (it has many names), functional tics, tremor, jerks and spasms and dizziness. Sometimes I have difficulty walking too and my balance is poor.
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