Hi, my name is timmy1966! Would appreciate any help and advice from anyone suffering from KTS

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timmy1966
timmy1966 Online Community Member Posts: 2 Listener
edited November 2022 in Rare, invisible, and undiagnosed conditions
Hi all. Just discovered this site and would appreciate any help and advice from anyone suffering from KTS. My granddaughter has been diagnosed with this. She is six years old and is starting to suffer with the symptoms and changes of KTS

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  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    Welcome to the community @timmy1966 :) Thank you for joining us, and for sharing the news of your granddaughter's diagnosis with us. 

    I don't live with Klippel-Trenaunay Syndrome (KTS), but I hope another member with experience of this will find your post soon. I can see that you've commented on a relevant discussion already, which is great to see!

    Do you mind me asking what kind of symptoms and changes she's experiencing at the moment?

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