Failing pips

2»

Comments

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Brilliant to hear things are moving @seabreeze ! :)

    Would you prefer them to make adaptations, or would you like to move? 
  • seabreeze
    seabreeze Online Community Member Posts: 59 Contributor
    @Tori_Scope hello there thank you for message. Hope you are well..I've been having fibro fog bad so I've been trying to keep my self occupied..
    Yes the last message I wrote everything is moving forward and I'm pleased that people can see I need help...having invisible illness is hard people think your well and with my issues people don't seem to understand really...which I think most of you on here will understand...I'm happy to move if I could as I want to get a place with no steps out fount and has a garden
  • seabreeze
    seabreeze Online Community Member Posts: 59 Contributor
    @Hannah_Scope the things I have coming are portable so to speak I'm not having any thing plumb or wired up as yet...it's all based on landlord..if he agrees for rails to be put up so I can get up steps etc then we can stay here...if he says no then we will have to move... personally I love my flat BUT it isn't going to be ideal for the future as steps will be to hard and bathroom is to small for big adaptions done...I also will need a shower and I only have a bath at moment...landlord won't want to do that...I asked about having one last year but he wasn't keen on the idea...
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    @seabreeze That's good then, at least there will be no kerfuffle with taking things out if you needed to move. It sounds like a catch 22 because you love your flat but having a garden, especially in the nicer weather would be lovely :)

  • seabreeze
    seabreeze Online Community Member Posts: 59 Contributor
    Up date...hello sorry I've not been about Christmas in this house hold was on hold we both had some kind of nasty cold/flu...so we spent it in bed...
    Since then I have had my bath board put in and set up, the bath stool came and toliet chair raiser thing...landlord agrees to the rail! I was in shock...but this is still gonna be hard with the steps so may have to go on housing list trouble is so many people on there...
    Having issues with doctors that it's depressing me and I have no idea how to sort I wish I had someone to help...I filled in appointment form for call back as I can't get there with my mobility as it is...and wanted a call back that day or next...I got one for a week later...I want help with sleeping, I need blood tests to check on my levels of vit d etc, and pains are back so may need meds increased or changed...also they keep messaging me to have smear and no records you have booked one please call etc...and I can't due to an issue that I'm waiting in a long qué to see gyno...had to fill in complaint form as well for my husband as they didn't issue his meds for Christmas and it was Christmas Eve and doctors where closed...my husband had no pain killers for the Christmas period or other meds he needs...111 would have been the best bet but my husband said he would be fine but of cause he was on a withdrawal so had to sort...doctors said it was a mis understanding between pharmacy and not doctors and pharmacy said they didn't get scripts on e system..no one own up...lucky my husband got what he needed but it could have been so dangerous...
  • seabreeze
    seabreeze Online Community Member Posts: 59 Contributor
    @Tori_Scope @Hannah_Scope I've woken to some happy news I've had letter from pip after sending them a letter to reconsider my claime...they have excepted on part of it but not mobility as yet but agreed to help me...which is brilliant...

    So for me sending the reconsider letter I wrote has helped...so anyone with fibromyalgia, hypermobility spectrum disorder and chronic fatigue you can win...

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    That's excellent news @seabreeze

    I'm so happy for you :) 
  • seabreeze
    seabreeze Online Community Member Posts: 59 Contributor
    @Hannah_Scope thank you 😊...just want to say this page has been very helpful and the people on it like your self...I mainly read stuff than talk...you are all amazing...
  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 15,456 Championing
    seabreeze said:
    @Hannah_Scope thank you 😊...just want to say this page has been very helpful and the people on it like your self...I mainly read stuff than talk...you are all amazing...
    oh thank you this has made my day 

Categories