Can’t bear cold flat plus other ills — Scope | Disability forum
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Can’t bear cold flat plus other ills

No energy to type but will say once again 
I have put a small EE truck hedger one but it’s still not helping may stay warm I am shivering and schijgb
vivjoud neighbour has been audible tjyoihkouy the night too
I Have been up all night sat in one place mostly attending to horrific itch and other vileness of the skin  dusssss on scdlp too very very very upset  very cold very tired
had to go in shower to try she’d each off most recent oucking session remnants of  blood s
in so couch cold I can go bear it literally shaking have put on layers after very quick shower by 6;30
sirru want to Edina in more about how I’m feeling but not well

Comments

  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
    Morning @ResilientNeighbour7 bless you - don't forget lack of sleep can make you feel cold and ill darling, have you got enough clothes on and you can always have your quilt over you when your sitting darling, hope your skin is feeling better after your shower. x
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,979 Disability Gamechanger
    It sounds like you are having a really difficult time at the moment @ResilientNeighbour7. I can hear how you are upset, cold, and tired. 

    Do you have anyone near you who you could talk to - such as your medical team and general support network? 

    Another resource you might find useful is Scope's Disability Energy Service. Please also remember that you are welcome to email [email protected]

    Take care for now and we will look forward to, hopefully, hearing from you again soon  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Tori_Scope
    Tori_Scope Scope Campaigns Posts: 12,465 Disability Gamechanger
    It's really cold at the minute @ResilientNeighbour7, isn't it? I'm currently in a flat without any heating on, and I can feel my fingers going stiff. 

    Did you manage to get any sleep last night? 

    Layering up, using hot water bottles, and having hot drinks, are all good suggestions I think :) I know they don't solve the core issue, but perhaps they can make things more comfortable for you?
    National Campaigns Officer, she/her

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  • ResilientNeighbour7
    ResilientNeighbour7 Posts: 198 Connected
    Where do I find kind people like you in real life in the real world in my proximity ?
    Sat here crying (silently), itching,aching, rotting, shivering even with all the things I’m using, surrounded by clutter, still harassed by that parasitic vicious racist downstairs, I’ve got nothing done today,  it’s dark already, 
    At least I can say I was able to access scope and received some kind replies so I’m not completely alone thanks you 
  • ResilientNeighbour7
    ResilientNeighbour7 Posts: 198 Connected
    Period pain plus all of this WHY
  • Luchia
    Luchia Community member Posts: 224 Pioneering
    I can’t really help with the neighbours situation but I do think reducing the clutter would help you greatly.
    it would be one less stress to deal with, I’d suggest setting a little time aside each day and try and do as much as you can manage.
    it would also help greatly with heating as it’s harder for central heating to warm up a cluttered home.

    Start with 3 piles - Keep, Donate/Sell & Bin.
    Try and fill at least one bin bag a day if you can manage it, you will be surprised how much less stress you feel is a clean & tidy home.

    Just don’t over exhaust yourself, it’s important to know your limits.
  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
    Bless you @ResilientNeighbour7 you know were always here for you darling just wish i could give you a proper hug x
  • ResilientNeighbour7
    ResilientNeighbour7 Posts: 198 Connected
    edited January 3
    Hi sue glad to see people like you care & have a heart x i saw your message reply at right time. Currently overhearing the downstairs neighbour reading out loud a letter of complaint from [Removed by moderator - name of housing association] and swearing about it as though to intimidate me! This I’m still trying to do the decluttering at my own pace as I deserve a clean living space and have every right to be here . It’s a world of dualities. Really bad people like the neighbour but then kind spirits like yourself. Trying to embrace the balance x
  • Luchia
    Luchia Community member Posts: 224 Pioneering
    edited January 3
    Hi sue glad to see people like you care & have a heart x i saw your message reply at right time. Currently overhearing the downstairs neighbour reading out loud a letter of complaint from [Removed by moderator - name of housing association] and swearing about it as though to intimidate me! This I’m still trying to do the decluttering at my own pace as I deserve a clean living space and have every right to be here . It’s a world of dualities. Really bad people like the neighbour but then kind spirits like yourself. Trying to embrace the balance x
    Please don’t over do it with the declutter just take it at your own pace, it really does sound like a terrible situation with the neighbour, I really hope it gets sorted for you soon as the sound absolutely dreadful.

    It sounds like your taking a positive step with the declutter and you absolutely deserve a nice and tidy safe space so your definitely on the right path with all that, if you ever seen any tips on cleaning/declutter please feel free to ask as I’m a bit of a clean freak and I’d be more than happy to give advice as it’s the least you deserve 
  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
    Morning @ResilientNeighbour7 for got to ask, hows your tummy now, have your monthly's subsided, it's one thing i certainly don't miss, x
  • ResilientNeighbour7
    ResilientNeighbour7 Posts: 198 Connected
    Nope not yet. And worst of all the vicious downstairs troll hasn’t stopped bullying me either. This is surely hell. I would’nt mind an early menopause or even death as it’s not like I’m one of these normal women who go onto become developed, get married and become parents & grandparents. What is the point of me going through all of this. Not only do I not look like a woman but I am mistreated by strangers too! Anyway on the other hand there are positives;  is that apparently having periods are a sign of health & if I can ‘survive’ such horrific symptoms every damn month & live to tell the tale, surely that accounts for something honourable 😳
  • ResilientNeighbour7
    ResilientNeighbour7 Posts: 198 Connected
    Forced to live in fear and can’t make a peep without neighbour banging but so far today I hoovered the hallway & kitchen (albeit with hellish banging from neighbour and with a flimsy cheap hoover that barely picks ups much) and through our one bag of rubbish but nowhere near down with the mountains of hell surrounding me !
  • ResilientNeighbour7
    ResilientNeighbour7 Posts: 198 Connected
    Also very tired after a horrid and wasted day outside following derm appointment seeing no results and for a new rash , they said they’ll check on Friday 
  • SueHeath
    SueHeath Community member Posts: 12,420 Disability Gamechanger
    Morning @ResilientNeighbour7 Us women surely do go through the mill with our monthleys i used to call mine "The grotts" simply because i felt grotty with them.
    You done well with filling a bag of stuff and cleaning the hallway and kitchen darling, try and pick a corner or another part of another room today to declutter, 
    Hope the new rash starts easing soon, and i look forward to hearing if you achieved another area of decluttering. x

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