Peeing way too much

Wibbles

My PEEING has been affecting me NEGATIVELY for many years

I am unable to travel anywhere, unless I am sure that there are toilet facilities at the other end, and on route as well.

It also means that I have to be careful with my fluid intake.

I need a pee, every hour or usually even more often

It is not the quantity that bothers me – it is the regularity and urgency – in that when I feel the need to go – I need to go within  a few minutes or I have an “accident”.

I regularly have accidents – when I don’t quite make it to the toilet and pee in my clothes or on the bathroom floor

My wife reckons that I “choose” to do this !!

I do not want a “bag” for reasons of hygiene and possible infection.

I am taking Tamsolusin (which I have been taking for a few years) and this doesn’t appear to help my condition at all because it causes me to pee more - and the side effects of causing a cough affect me negatively.

I have a normal size, but slightly hard prostate but have never had any problems peeing – so why was I put on a drug that relaxes the muscles in the prostate to increase the flow of urine in the first place ?

I have had numerous scans and intrusive looks up my urethra and my prostate with no result - the last one was 3 months ago and Urology have failed to even update me from then

 

Hannah_Alumni

Hello @Wibbles

I know you didn't choose to do have this. I have IBD, different end but I had no control over my bowels and was in the same situation. I was anxious and needed to know where the toilet facilities were at all points. 

I am so sorry that after all the poking and prodding, they still have failed to update you. 

There are a couple of things I could suggest using my own experience and hopefully it transfers and can help but I know it's a different bodily function.

I would suggest speaking to your GP and seeing if they can refer you to another consultant under the Urology department. It may be that another set of eyes on the matter could show something new. I changed consultants and basically got the ball rolling on my new plan.

You could also ask the GP about your medication, why you are on it and whether there is a sister drug that will have less of a side effect on your bladder. I know you've probably done your research on this, but new drugs and funding in your area may mean something is available that isn't nationally. Again, in my experience I was once offered a new drug that had just passed trials, but very few in the IBD community had knowledge of it. 

I know you do not want a bag for hygiene and possible infections reasons. I have a stoma myself. I am very lucky because it gave me a new lease on life. I fought for mine, I knew all the good and bad before having the surgery and doing that research and speaking to people with stomas I found more positives for myself to have it. I would say that if you are at the point of looking at all options in front of you, and the bag is one of them, ask for some supplies. Have a play around with them, see what options there are with them.

Hygiene around that situation is in conjunction to how you are able to manage the changing and then that will affect your number of infections. I remember you speaking about your health on another thread, and your wife being your carer so I understand there will be difficulties, but I always say it's worth having all the information and giving it a go. It also shows the specialist what works and what doesn't. With stoma surgery and even self-catheterising, the want from them to see you being able to change it for yourself is high. They sometimes don't let patients out of hospital after surgery until they can change on their own.

It's hard because it is like being a show for them, but it ticks a box, and it will move everything along to hopefully find something for you that works. I would also look at asking for another scope (sorry I know they are not pleasant) for Diverticulitis. Sometimes if you have pockets in the intestinal lining that become inflamed that can cause more frequent and urgent feeling urination. 

I hope this helps and please keep us updated  

Wibbles

I complained and received an email offering me a phone consultation 
This is not possible for me to have - poor speech
So I await a face to face on a few years time!
It appears that there are two options 
TURP or Urolift 
I have no idea what either involve 
Any advice welcome 

Alex_Alumni

Hello @Wibbles I'm sorry to hear you were offered a consultation which isn't accessible for you, have you asked for a face to face one?

I'm afraid I'm no expert on either of the procedures you mention, but this information on the NHS website 'Alternatives to TURP' might be useful in exploring options.

Although asking for anyone's own experience of the above is of course welcome, it's always advisable to speak to a GP or other medical specialist about any treatments or procedures you might be considering. 

Let us know how things go as and when  

Wibbles

Alex_Scope said:

Hello @Wibbles I'm sorry to hear you were offered a consultation which isn't accessible for you, have you asked for a face to face one?

I'm afraid I'm no expert on either of the procedures you mention, but this information on the NHS website 'Alternatives to TURP' might be useful in exploring options.

Although asking for anyone's own experience of the above is of course welcome, it's always advisable to speak to a GP or other medical specialist about any treatments or procedures you might be considering. 

Let us know how things go as and when  

These are ALL to help/improve the urine flow
My problem is that I am peeing too much!! 

Alex_Alumni

Oh my mistake @Wibbles I apologise, as I mentioned I'm not an expert on the subject. 

Have you had any luck arranging a face to face consultation yet?

Wibbles

Alex_Scope said:

Oh my mistake @Wibbles I apologise, as I mentioned I'm not an expert on the subject. 

Have you had any luck arranging a face to face consultation yet?

No - can't get a response from urology
They also have some important info incorrect
They say in a previous letter that I struggle to pee which is nonsense - I cannot stop peeing - I emailed Urology yesterday to inform them....
No response 

Wibbles

Wibbles said:

Alex_Scope said:

Oh my mistake @Wibbles I apologise, as I mentioned I'm not an expert on the subject. 

Have you had any luck arranging a face to face consultation yet?

No - can't get a response from urology
They also have some important info incorrect
They say in a previous letter that I struggle to pee which is nonsense - I cannot stop peeing - I emailed Urology yesterday to inform them....
No response 

Still no response 

durhamjaide2001

I have the same problem as well I have Diabetes insipidus  which means I wee a lot and I'm a lot more thirsty than others but it's controlled by medication. However I have recently had bladder problems went for a test yesterday and I had to do an in put and out put test for 3 days. 

Wibbles

durhamjaide2001 said:

I have the same problem as well I have Diabetes insipidus  which means I wee a lot and I'm a lot more thirsty than others but it's controlled by medication. However I have recently had bladder problems went for a test yesterday and I had to do an in put and out put test for 3 days. 

I've done a few of those in my life!!
But no cause has ever been found for my peeing
I'm not diabetic either
I've had a tube down the penis on four occasions too

durhamjaide2001

Mine isn't diabetic but that's what you called the condition.