Peeing way too much

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Wibbles

My PEEING has been affecting me NEGATIVELY for many years

I am unable to travel anywhere, unless I am sure that there are toilet facilities at the other end, and on route as well.

It also means that I have to be careful with my fluid intake.

I need a pee, every hour or usually even more often

It is not the quantity that bothers me – it is the regularity and urgency – in that when I feel the need to go – I need to go within  a few minutes or I have an “accident”.

I regularly have accidents – when I don’t quite make it to the toilet and pee in my clothes or on the bathroom floor

My wife reckons that I “choose” to do this !!

I do not want a “bag” for reasons of hygiene and possible infection.

I am taking Tamsolusin (which I have been taking for a few years) and this doesn’t appear to help my condition at all because it causes me to pee more - and the side effects of causing a cough affect me negatively.

I have a normal size, but slightly hard prostate but have never had any problems peeing – so why was I put on a drug that relaxes the muscles in the prostate to increase the flow of urine in the first place ?

I have had numerous scans and intrusive looks up my urethra and my prostate with no result - the last one was 3 months ago and Urology have failed to even update me from then

 

Hannah_Alumni

Hello @Wibbles

I know you didn't choose to do have this. I have IBD, different end but I had no control over my bowels and was in the same situation. I was anxious and needed to know where the toilet facilities were at all points. 

I am so sorry that after all the poking and prodding, they still have failed to update you. 

There are a couple of things I could suggest using my own experience and hopefully it transfers and can help but I know it's a different bodily function.

I would suggest speaking to your GP and seeing if they can refer you to another consultant under the Urology department. It may be that another set of eyes on the matter could show something new. I changed consultants and basically got the ball rolling on my new plan.

You could also ask the GP about your medication, why you are on it and whether there is a sister drug that will have less of a side effect on your bladder. I know you've probably done your research on this, but new drugs and funding in your area may mean something is available that isn't nationally. Again, in my experience I was once offered a new drug that had just passed trials, but very few in the IBD community had knowledge of it. 

I know you do not want a bag for hygiene and possible infections reasons. I have a stoma myself. I am very lucky because it gave me a new lease on life. I fought for mine, I knew all the good and bad before having the surgery and doing that research and speaking to people with stomas I found more positives for myself to have it. I would say that if you are at the point of looking at all options in front of you, and the bag is one of them, ask for some supplies. Have a play around with them, see what options there are with them.

Hygiene around that situation is in conjunction to how you are able to manage the changing and then that will affect your number of infections. I remember you speaking about your health on another thread, and your wife being your carer so I understand there will be difficulties, but I always say it's worth having all the information and giving it a go. It also shows the specialist what works and what doesn't. With stoma surgery and even self-catheterising, the want from them to see you being able to change it for yourself is high. They sometimes don't let patients out of hospital after surgery until they can change on their own.

It's hard because it is like being a show for them, but it ticks a box, and it will move everything along to hopefully find something for you that works. I would also look at asking for another scope (sorry I know they are not pleasant) for Diverticulitis. Sometimes if you have pockets in the intestinal lining that become inflamed that can cause more frequent and urgent feeling urination. 

I hope this helps and please keep us updated