New Green Paper Discussion - now includes accessible formats and consultation event sign up links!

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  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 215 Empowering

    I have an occupational therapist report which details my needs and the aids provided It also says I need a stairlift and low level shower , but has to wait to see if i can get them on a grant from the council dwp have already got a letter from my GP stating my anxiety and depression is from 1973, and proof of my hearing loss and my cpap proof , on the re-assessment form it says not to send that letter again from the GP. I've got letters from my after care cancer team stating I have pain from the surgery , I don't know what more they want from me . I have not improved I've got the 3 conditions now that have been added . The occupational therapist letter will prove everything to them . I hate the calls they make to get you off guard to try and catch us out .

  • noonebelieves
    noonebelieves Online Community Member Posts: 627 Championing
    edited April 17

    Hi @jasminehoop, I just wanted to say - I’m genuinely moved by the determination and clarity in your message. It takes strength to channel frustration into purposeful action, and what you’re doing -planning to meet your MP, preparing a detailed letter, and seeking concrete data -is not just commendable, it’s powerful. You are the voice this government needs to hear, loud and clear.
    I completely share your concerns about how detached and sanitised the narrative around these so-called “reforms” has become. These proposals are anything but benign…. They’re  so brutal, vague, and catastrophically out of touch with the reality of disabled people’s lives. They’re built on the same tired logic that frames support as dependency and dignity as optional. It’s totally  unacceptable.


    You asked about:

     “Does anyone know if there's a document going around, or a webpage, that concisely breaks down and lists the ACTUAL impacts of the proposed cuts”-


     I  recommend checking out the DPO Forum England: Benefits Green Paper Explained document 
    It’s one of the few things I’ve come across that really condenses the key threats in a no-nonsense way with some useful statistics.
    There’s also a Carers UK briefing on the Green Paper’s impact on unpaid carers

    and Child Poverty Action GroupShort briefing on Pathways to Work green paper(impact on children)
    -very well worth reading and sharing. And if your condition is supported by a trust or advocacy group like MS Trust or Parkinson’s UK, Mencap(learning disability) etc they often have brilliant, evidence-based accessible resources and campaign updates tailored to your situation.

    I’ve also found it really helpful to read several breakdowns of the Green Paper’s impact, which has allowed me to strategically oppose it directly through the consultation email and to submit my own detailed response, as I’ve shared in earlier posts. I’m encouraging others to do the same- because every individual voice matters, and together, we can show that no matter how hard they try to silence us, we will be heard.


    Honestly, your idea of using a Freedom of Information request to highlight to your MP how many of her constituents are on PIP or UC (LCWRA) is spot on. It takes the fight directly to your MP’s doorstep, backed by numbers and humanity arguments, something far too often missing from political rhetoric. I think your MP needs to feel the weight of her silence and the real consequences of her choices.


    Whatever the outcome,never underestimate what your voice can achieve. You’re already doing something incredibly brave by holding your MP to account and refusing to let this slide under the radar. That’s how movements build. That’s how change happens.
    Let’s keep up the pressure in every direction, on every front. Let’s scrutinise these proposals like never before, expose them for what they are, and show that disabled people and our allies will not be silenced or sidelined.


    In solidarity, and with deep respect for what you’re doing 🙏🏽✊

  • Skyla
    Skyla Online Community Member Posts: 19 Contributor

    I'm in the same boat as you although I live alone. I'm worried sick as my PIP award is until Feb 2026 and they're supposed to contact you in Feb 2025 for a reassessment. Not had any letter yet but clearly it's due anytime soon and it's leaving me with terrible anxiety day and night as it will mean I will also become homeless if I lose it. I rent so I'm panicking all the time and have no help at all, friends or family. Don't know who to speak to. Can't fave the thought of another assessment as it took 2 years of appealing and only got it in the end thanks to CAB.

    It's just so awful that we are being put in this situation...

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 215 Empowering

    I know it is horrible. I phoned the dwp because since my award I now have profound hearing loss and use a cpap machine for sleep apnea , so they said because my review is due it would be faster to do a re-assessment . The form is similar to the original but not as many pages lol .

    They might contact you to say your award is extended .

    If mine is awarded again , I lose the year left as it goes from March 2025. I am also hoping for a longer term as I am going to be retired in 6 years but have to wait until I am 68 to get my retirement ,strange but it is how it is , so could do with a ten year award really to take into retirement then i keep PIP with light touch review .

    I need this pip or lose everything including my house .

  • Topcat71
    Topcat71 Online Community Member Posts: 122 Empowering

    I am trying to be positive about it all

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 215 Empowering

    This is uplifting, but please make your own mind up .

    DWP Whistle-blower Reaches Out – What They Said is Alarming!

  • Passerby
    Passerby Posts: 164 Empowering

    Keir Starmer and his clowns are scrambling to bribe revolting MPs against disability benefits cuts, allowing them to abstain!

    "One Labour MP said: “When people abstained on the winter fuel vote, they were warned that it had been taken by the leadership as voting against the government. This time, however, a number of MPs have been offered the opportunity to abstain.”

    https://www.theguardian.com/politics/2025/apr/17/ministers-avoid-labour-rebellion-disability-cuts

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 215 Empowering

    Under five's actually grow and cost more , I really hope MP's will vote against the cuts and just risk their jobs . They work for the people who voted them . I don't think MP's should be blackmailed into voting , this is control .

  • johnnyy85
    johnnyy85 Online Community Member Posts: 72 Contributor
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    Disabled Labour Members’ Rep Slams Starmer at Secret Meeting of Labour Supremos

  • johnnyy85
    johnnyy85 Online Community Member Posts: 72 Contributor
  • jul1aorways
    jul1aorways Online Community Member Posts: 153 Empowering

    Hi @Catherine21

    I apologise if I didn't explain myself too well. although you didn't understand what was being said in the article either.

    I'll do my best to explain it to you. When an MP has a constituency, that means that they have an area of the country that they represent in parliament.

    Before there is a Local or General Election, candidates from different political parties gather and promote what their political party will do for the local people of that particular constituency.

    Say, for example that Labour, the Conservatives, the Liberal Democrats, Reform and the Green Parties all wanted to represent (or stand at) that constitutancy.

    If Labour won the say, for instance the General Election last year in that constituency, it means that the local people voted for them in greater numbers than any other party.

    A majority means that the number of votes Labour got say, for instance 10 thousand votes and the party who had got the second highest number of votes was the Conservatives with 6 thousand votes.

    That meant that Labour had got 4 thousand more votes than the Conservatives. That is called a majority.

    If they were in a constitutancy with say, for example 8 thousand disabled people who claimed PIP, it would mean that if more than 4 thousand of those people voted against Labour, at the upcoming Local Elections on the first of May, Labour would be referred to as losing their majority of 4 thousand votes which they would do directly as a result of disabled people wanting to vote them out because of the cuts in eligibility to PIP.

    I hope that you can now understand what I was saying in my post and the article. If there is still something you are not sure about, do message me back! 👍😊

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 215 Empowering

    I am glad you explained this , because it makes it so clear . I really am not good at understanding politics .

  • chiarieds
    chiarieds Online Community Member Posts: 16,753 Championing

    Hi @onebigvoice - you have always invited comments, which I appreciate, tho I'm sure we will keep on disagreeing over some things! 😊

    Members will also disagree with some of what I say too (even if I also think I'm right, but I'm still a work in progress hoping to learn more)! As you say, that's what this forum is about, so long as such discussions are respectfully done.

    I know you comment because you are an advocate for your friends & other disabled people, which I completely respect.

    Dare I ask if you could say briefly what the court case is about, I'd be grateful, & yes, if I can usefully comment, then of couse I will. poppy is coming down to visit me again on the 23rd too, so hope it's an auspicious day.

    I hope you're keeping well, & still writing some poetry.

  • YogiBear
    YogiBear Online Community Member Posts: 157 Empowering

    Tomorrow's Guardian Front Page - 18.04.25 - Ministers scramble to stop Labour rebellion on disability benefit cuts.

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  • noonebelieves
    noonebelieves Online Community Member Posts: 627 Championing

    An email received from DWP Public Events Consultation Team :

    RE: Booking to attend virtual event-Reforming the structure of the health and disability benefits system (chapter 2)

    Thank you for expressing interest in the Pathways to Work public consultation events.

     

    As expected, we are receiving a large amount of interest in all the consultation events.

    You have now been placed on a waiting list, will be in touch if a place becomes available at your requested event.

    We are still accepting responses to the Pathways to Work Green paper online, the survey can be found atwww.Gov.uk/government/consultations/pathways-to-work-reforming-benefits-and-support-to-get-britain-working-green-paper

     

    Regards,

     

    Pathways to Work events team


    ANY THOUGHTS?……

  • onebigvoice
    onebigvoice Scope Member Posts: 894 Pioneering

    Great, I may have put it a bit double dutch, if I don't get contacted I won't use, is what I meant, and those that have given sites to look at "Links" I welcome them and add to the appropiate sections of the document.

    I say document as this one has taken chapter and verse and cross referencing back to 2008 when I did an A to Z of benefits which is still being added to and amended to EVERY DAY.

    THANKS AGAIN, to everyone here contributing IN EVERY WAY, as we have said case histories, and outcomes are the start, the mid section is the AMENDMENTS MADE TO THE LAW, TRIBUNAL, OR CLAIMENTS DETAILS - GOOD OR BAD - AND IF THE CLAIM WENT UP OR DOWN WITH WHAT THEY USED - ANY COMPENSATION.

    IT HAS NEVER BEEN ABOUT COMPENSATION, but the charters and laws placed on us to claim benefits of any sort. This latest change being one. I have not spent the last 4 years getting the Social Care Package in place to have an accountant tell me she can change it with NO SUPPORTING EVIDENCE.

    All supporting evidence must 1. State the reason for the change.

    2. must state the original draft in law.

    3. must state the expected outcome.

    4. must state an exceptable period to implement it and see results.

    5. If this is a longer period of implemenmtation then, unless you can state why, (and release of funding later is not a reason for change.) You have not budgeted correctly since if you are loosing money you already know the reason, which is normally bad admin at top, using others to support the errors of their management, with more miss management.

    6. Review the implementations after 1 month/2 months/6 months to make sure you are on track and that any errors that are shown up, are rectified on the run. ( in other words being monitored until targets are met.)

    7. If there is no way to implement changes, then don't change the system.

    8. MORE IMPORTANTLY, all amendments made after the FIRST DRAFT, MUST BE SHOWN AS AN AMENDMENT AND LOGGED.

    Number 8. is where the DWP and PIP Mare falling apart. Since (I have stated before) EVERY tribunal result MUST be logged, because, - if an assessor is not using the "up to date" forms then every assessment s/he does is suspect? By logging the reason why the assessment cannot be used, the DWP and PIP can see how many "rejections there are" and show this to us.

    This added recently.

    REBUTTAL TO TRIBUNAL 23RD APRIL 2025.

    REFERENCE QUOTE FROM A SCOPE FORUM IN ANSWER TO INFORMATION ALREADY GIVEN.

    "It seems there may be some misunderstanding regarding my request. It is not my responsibility to verify the claims you've made. If you are confident in their accuracy, please provide the specific sources, legal references, or official documents that support them. These claims cannot be treated as established facts without clear evidence."

    I'm not responsible for DWP's actions or lies, nor can I explain 15 years of treachery in 15 minutes. If you wish to make a difference, then read what I've suggested.

    Otherwise, as I've said twice, please stop telling me I am wrong when you don't (yet) know what I'm talking about. My comprehension is acute, but typing and explaining myself is exhausting. Not understood/not believed is the same to me.

    I think the reviewer was Paul Litchfield, and Professor Harrington was the government's medical advisor, but these are minor points and make no difference to my claims. Read DNS reports for the facts about those WCA reviews. Or don't.

    I will when a submission to the court next week will be including this and others for REFERENCE AND JOGGING NOTES FOR ME, to understand how, and why we are having drastic reforms to a system that can be used, but due to the "Blurring of the edges" and I make no excuse for me or them since I deal in plain English and apply the same laws that are use to inflict misery and shame on the NHS when the people who are running the "show" do not realise what half, and that is being generous, more live 98% of support both financially and medically has now been taken over by them. (DWP/PIP)

    I will also be mentioning the Charters and Laws that govern the assessment process, and ask:
    What is the purpose of an assessment for benefit? (ANY BENEFIT)
    What charter is used to allow a claimant to be called in for an assessment?
    Is their a set period between assessments, and how is this policed. And, if someone is starting to claim any benefits for the first time, who or where is their first port of call, or go to person/department?

    I already know this but since the Secretary of State is Duty bound to attend, I will only be reinforcing what I have said about the system and its administration, and the loss of administration by the NHS when blaming the NHS for the problems that we are now in, when it is the administration of the system, where many people including Professor Harrington, Paul Litchfield, Dr Mike Orton (may not be known by many, but took over from Pro. Harrington, the Grayling report, and all the white papers presented to parliament twice in one year, have spent 1000's of hours trying to explain what is wrong with the system, but then bring out their own version, from ours.
    That would not be so bad, but, in altering small words changes the WHOLE CONTEXT OF THE STATEMENT. One such example in the 4 point ruling is changing the Billions of pounds investment into the Disabled and NHS to get it up and running, has been changed to we are now investing in getting "people" into work?
    THIS is an inclusion of EVERYONE NOT WORKING?
    SORRY this will be asked.....

  • onebigvoice
    onebigvoice Scope Member Posts: 894 Pioneering

    Hi, and just to say, always get involved, that is what yourv MP is for. This also includes councillors in your area, as they are the ground troups when YOUR MP is in parliament or out and about.

    Find your local office, and just pop in, tell them your concerns and they should assist you, because afterall you voted them in and its a feather in their cap if they assist in putting even the little things right.

    Its not only about complaints against the System of assessment and loss of benefits, but to ask about bin collections. Are there changes being made to the way in which it is collected? Bins, Bags, or recycle collection or collection times. Are busses or public transport adequate? do they come on time? Do you have trouble with unreasonable behaviour in your area, is there enough police see in your area, do you want more, or do you think that the speed camera near you is not needed, or do you need one, because of excessive speeds in the town centre. This list is anything that affects you goes through your council and through the elected party.

    Hospital wait times, A & E and where is the nearest. So if we were all tyo get involved like here locally, its just another way of getting heard.

    As a point of interest if you send your APPOINTED PARLIAMENTARY M P AN E-MAIL listing your concerns, and there is no need tto go intop great detail at this time, (in the first contact.) they are obliged to answer and/or invite you to give more details where s/he can present yours and others that have contacted her over what ever issues you have raised.

  • Catherine21
    Catherine21 Posts: 5,266 Championing

    Public law project I've emailed for half hour advice think thier on Easter break I've got solicitor calling 1.20 for 15 min legal advice maybe you could do that also have more understanding than me also emailed disability rights