Green Paper Discussion - includes accessible formats and consultation event sign up links!

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  • [Deleted User]
    [Deleted User] Posts: 1,170 Championing
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  • Tumilty
    Tumilty Online Community Member Posts: 472 Empowering

    @charlie72 and @Catherine21 I saw my GP and she says usual procedure is pip contact Dr's but she will write a letter to send when I get the form to fill in but how the message reads is that they assess what was in claim and then drag me in if need be without having a form to fill in. Is this correct? We all worry about what's to come. ,🙏

  • Catherine21
    Catherine21 Online Community Member Posts: 9,788 Championing

    I'm really starting to understand pip is not a disability benefit so what will protect us ?

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 442 Empowering

    I'm in the process of re-assessment , just got the form yesterday . Phoned MacMillan who helped me fill it in . I hate that they contact my GP , he is horrible , but he has to be honest and tell them my issues . So will send it first class Tuesday to be signed for, not worth sending it today or Saturday as it is bank holiday weekend , I would rather send it registered then I know they have received it .

    Do we get another assessment via phone with re-assessment ? I had a paper assessment last time and got a phone call asking questions to try and catch me out , it is brutal and caused me to have panic attacks and I never slept for days worrying .

  • jasminehoop
    jasminehoop Online Community Member Posts: 51 Contributor

    My MP is new since the boundary changes last year. As far as I can tell she hasn't raised her voice against the proposed cuts and so-called reforms. I fear she won't, and won't be persuaded to. Nevertheless I want to contact her and give her no option but to look at the facts, as opposed to just getting a reply where she sings from the Green Paper hymn sheet.

    Does anyone know if there's a document going around, or a webpage, that concisely breaks down and lists the ACTUAL impacts of the proposed cuts rather than the conveniently sanitized version most politicians seem to be reading? I would like to send it with a covering letter that talks about how the cuts will affect me and my situation. In fact, I'm going to try and get a face to face appointment with her at her surgery (assuming she even runs one occasionally). I'll present my letter and the list of facts to her after I've asked her what she intends to do about these acts of fiscal terrorism.

    I'm also wondering if it's possible to do a FOI request for an estimate of the number of her constituents currently in receipt of PIP, as well as those on UC in the LCWRA group. I want to hear her defend her support for the cuts when confronted with figures that predict what the real local toll will be. (She's Labour, by the way.) Does anyone know if such a FOI request would be realistic?

  • Tumilty
    Tumilty Online Community Member Posts: 472 Empowering

    Yes I got that call too out of the blue and was in total mind fog. They take no consideration how our health affects random calls.At least you get a letter and form to fill before dragging you in for assessment. So sorry your GP is not good

  • charlie72
    charlie72 Online Community Member Posts: 259 Pioneering

    Going by what your saying if I'm correct, apologies if I'm wrong!! you believe they can drag you in for a face to face assessment before youv'e filled in your review form? First of all they can't assess you before you have filled in your form, that's what the form is for, to see if your condition has changed, i.e you might have gotten worse/better.

    Your GP is correct in what she told you, DWP/PIP do sometimes contact them to clarify points you have made on your review form. If your GP has written evidence for you that a face to face assessment could cause you undue further harm, either physically or mentally, you have a right to ask for reasonable adjustments, i.e, a telephone, or paperbased assessment. They absolutley cannot make you, or as you put it, drag you in for your assessment as it would break the equality act 2010. Sometimes these forms from DWP/PIP can be very confusing, hard to understand, and make you very stressed out,and confused.

    I was the same on my last review last year, I rang the PIP helpline and they were actually very helpful once I told them my worries and concerns. I told them I'd need either a telephone or paperbased assessment, and could provide evidence from my GP. 2 weeks later I got a text saying my review was complete, and it was done paperbased. Try not to worry too much, I'm sure you'll be fine, hope it goes well for you!!

  • Catherine21
    Catherine21 Online Community Member Posts: 9,788 Championing

    I never heard of being asked to go in without completing the form it will be like last time you send form in and you may get a date for assessment but you can ask for a call you can also ask for it be to recorded write as much as you can some people say no change I wouldn't I write everything if you want extra proof do SARS form you can go back years will have your diagnosis and records of when you spoke to doctors about medication or how your feeling

  • noonebelieves
    noonebelieves Online Community Member Posts: 705 Championing
    edited April 2025

    Thanks so much for your thoughtful post, @onebigvoice - I genuinely appreciate you taking the time to share your insights with all of us here. I completely agree with your sentiments about this forum - like you, I’ve drawn immense strength, clarity, and solidarity from the lived experiences shared here, as well as from the legal and systemic knowledge others have so generously offered. This space has been not only a source of support but also a safe and supportive haven, as well as a rallying point -a collective call to action- especially in light of this ruthless and dehumanising proposals set out in the government’s green paper.Together, our voices matter, and they must be heard.I just had a couple of questions that came to mind while reading your post:

    You mentioned the : 

     “new elected Senedd Membership we have (I am proud to say I am one)” 

     I wanted to ask, is this newly elected Senedd actively fighting our current cause against the catastrophic benefit cuts set out in the “Pathways to Work: Reforming Benefits and Support to Get Britain Working Green Paper”? I’d love to understand more about how this Senedd engagement is helping shape the fight, especially in amplifying disabled voices and lived experience.

    And regarding your request:

    “To those I have not asked, can I quote with names missing, comments made here of your experiences to a court, if I have not already asked? If the answer is no then don’t reply.”

    If it’s to support our shared fight against these dangerous and dehumanising proposals -or anything closely related to this and uphold your rights - then yes, you absolutely have my full consent to quote any of my comments to help strengthen your argument in court.

    I deeply respect the courage it takes to keep going after a 10-year battle, and I truly hope the court case on Apr 23rd brings the justice and recognition you deserve.Keep doing what you’re doing- your determination and fierceness are making a difference.

    We will not be silenced. Disabled voices matter.

    In solidarity✊

  • Catherine21
    Catherine21 Online Community Member Posts: 9,788 Championing

    Ps before I got my form received a txt saying your pip form in the post saying if haven't received in two weeks contact us so that's good incase it's lost

  • Catherine21
    Catherine21 Online Community Member Posts: 9,788 Championing

    Holly from that letter I sent you looks like they can push it through ?

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 442 Empowering

    I have an occupational therapist report which details my needs and the aids provided It also says I need a stairlift and low level shower , but has to wait to see if i can get them on a grant from the council dwp have already got a letter from my GP stating my anxiety and depression is from 1973, and proof of my hearing loss and my cpap proof , on the re-assessment form it says not to send that letter again from the GP. I've got letters from my after care cancer team stating I have pain from the surgery , I don't know what more they want from me . I have not improved I've got the 3 conditions now that have been added . The occupational therapist letter will prove everything to them . I hate the calls they make to get you off guard to try and catch us out .

  • noonebelieves
    noonebelieves Online Community Member Posts: 705 Championing
    edited April 2025

    Hi @jasminehoop, I just wanted to say - I’m genuinely moved by the determination and clarity in your message. It takes strength to channel frustration into purposeful action, and what you’re doing -planning to meet your MP, preparing a detailed letter, and seeking concrete data -is not just commendable, it’s powerful. You are the voice this government needs to hear, loud and clear.
    I completely share your concerns about how detached and sanitised the narrative around these so-called “reforms” has become. These proposals are anything but benign…. They’re  so brutal, vague, and catastrophically out of touch with the reality of disabled people’s lives. They’re built on the same tired logic that frames support as dependency and dignity as optional. It’s totally  unacceptable.


    You asked about:

     “Does anyone know if there's a document going around, or a webpage, that concisely breaks down and lists the ACTUAL impacts of the proposed cuts”-


     I  recommend checking out the DPO Forum England: Benefits Green Paper Explained document 
    It’s one of the few things I’ve come across that really condenses the key threats in a no-nonsense way with some useful statistics.
    There’s also a Carers UK briefing on the Green Paper’s impact on unpaid carers

    and Child Poverty Action GroupShort briefing on Pathways to Work green paper(impact on children)
    -very well worth reading and sharing. And if your condition is supported by a trust or advocacy group like MS Trust or Parkinson’s UK, Mencap(learning disability) etc they often have brilliant, evidence-based accessible resources and campaign updates tailored to your situation.

    I’ve also found it really helpful to read several breakdowns of the Green Paper’s impact, which has allowed me to strategically oppose it directly through the consultation email and to submit my own detailed response, as I’ve shared in earlier posts. I’m encouraging others to do the same- because every individual voice matters, and together, we can show that no matter how hard they try to silence us, we will be heard.


    Honestly, your idea of using a Freedom of Information request to highlight to your MP how many of her constituents are on PIP or UC (LCWRA) is spot on. It takes the fight directly to your MP’s doorstep, backed by numbers and humanity arguments, something far too often missing from political rhetoric. I think your MP needs to feel the weight of her silence and the real consequences of her choices.


    Whatever the outcome,never underestimate what your voice can achieve. You’re already doing something incredibly brave by holding your MP to account and refusing to let this slide under the radar. That’s how movements build. That’s how change happens.
    Let’s keep up the pressure in every direction, on every front. Let’s scrutinise these proposals like never before, expose them for what they are, and show that disabled people and our allies will not be silenced or sidelined.


    In solidarity, and with deep respect for what you’re doing 🙏🏽✊

  • Skyla
    Skyla Online Community Member Posts: 21 Contributor

    I'm in the same boat as you although I live alone. I'm worried sick as my PIP award is until Feb 2026 and they're supposed to contact you in Feb 2025 for a reassessment. Not had any letter yet but clearly it's due anytime soon and it's leaving me with terrible anxiety day and night as it will mean I will also become homeless if I lose it. I rent so I'm panicking all the time and have no help at all, friends or family. Don't know who to speak to. Can't fave the thought of another assessment as it took 2 years of appealing and only got it in the end thanks to CAB.

    It's just so awful that we are being put in this situation...

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 442 Empowering

    I know it is horrible. I phoned the dwp because since my award I now have profound hearing loss and use a cpap machine for sleep apnea , so they said because my review is due it would be faster to do a re-assessment . The form is similar to the original but not as many pages lol .

    They might contact you to say your award is extended .

    If mine is awarded again , I lose the year left as it goes from March 2025. I am also hoping for a longer term as I am going to be retired in 6 years but have to wait until I am 68 to get my retirement ,strange but it is how it is , so could do with a ten year award really to take into retirement then i keep PIP with light touch review .

    I need this pip or lose everything including my house .

  • Topcat71
    Topcat71 Online Community Member Posts: 194 Empowering

    I am trying to be positive about it all

  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 442 Empowering

    This is uplifting, but please make your own mind up .

    DWP Whistle-blower Reaches Out – What They Said is Alarming!

  • [Deleted User]
    [Deleted User] Posts: 1,170 Championing
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  • sarah_lea12
    sarah_lea12 Online Community Member Posts: 442 Empowering

    Under five's actually grow and cost more , I really hope MP's will vote against the cuts and just risk their jobs . They work for the people who voted them . I don't think MP's should be blackmailed into voting , this is control .

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