Mpn

Hi @Stuart2412 and welcome. I'm sorry to hear of your diagnosis. How are you feeling now you're out of hospital (seven weeks is a long time isnt it?).

Do you remain under the care of a haematologist and have a plan for keeping as well as possible with drug therapies? My mum had MDS (myeloid dysplastic syndrome), a different form of blood cancer.

Have you heard of MPNVoices.org.uk ? They are a charity in the UK and hold forums (in-person and online) but I don't think it's a forum such as this one but might be of additional interest and support for you.

I hope you have support at home and that you find it here with Scope - I'm sure you will.

Depending how you are affected/what support you need, have you considered applying for PIP (personal independence payment)? That could be a big help to you and might be worth considering.

Take good care and my very warmest wishes to you 🙏.

That's awful @Stuart2412 I'm so sorry for the pain you're suffering from 🫂. I'm glad your biopsy is now 'only' 5 days away; each day must be very difficult though in the meantime. It's almost impossible to imagine that pain for us that don't have it; I can truly empathise though, especially after caring for my mum.

I'd imagine they'll be able to properly target your therapy after your biopsy which I'd expect will give you relief, but also keep you as stable as possible and prevent complications or deterioration.

I'm guessing you know that Scope have a helpline you can call to chat things through if you need to.

Also, Macmillan Cancer Support were an amazing source of help to us and also have specialist benefits advisors too, if needed . They're on 0808 808 0000 seven days a week 0800 to 2000hrs for the helpline and the benefits/money advice is Monday to Friday 0800 to 1800hrs (same 'phone number).

Wishing you the very best for Friday and thinking of you 🙏.

You're very welcome @Stuart2412. I completely understand your worry. I will be keeping everything crossed for you and praying it is not the type you are fearing. I'll be thinking of you and very strongly hoping for the best outcome for you with your results 🙏.