Mpn

Stuart2412
Stuart2412 Community Member Posts: 20 Listener
in Start here and say hello!

Hi I am new my name is Stuart I recently got out of hospital after being in for 7 weeks I have fnd which makes my legs shake and now have a wheelchair while in hospital been diagnosed with mpn thrombocytosis which is a blood cancer there is no cure

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  • Stuart2412
    Stuart2412 Community Member Posts: 20 Listener

    Hi yes I am on the mpn site and get lots of advise about it unfortunately I'm with mayday haemotolgy and at the moment they have only put me on aspirin to stop my platelets getting higher but I keep telling them I am having bad pain in hands feet and knees it's like my bones are crushing it's been like this for 6 months now I am having a bone marrow biopsy on Friday to see which type mpn I have and maybe I might get some help then on top off all this when my feet touch the ground after 10 mins they turn blue

  • Stuart2412
    Stuart2412 Community Member Posts: 20 Listener

    Thankyou for that I am happy I have the bone marrow biopsy but am worried about the result as you no there's different types of mpn and the way my bones are hurting I'm worried it could be lykemyo my fingers are crossed

  • Holly_Alumni
    Holly_Alumni Scope alumni Posts: 6,534 Championing

    Welcome to the community @Stuart2412 and thank you for sharing. I hope the forum can somewhat act as a distraction for you when things are tough. There are lots of lovely people here and lots to do. I wish you all the best with your results. 🙂

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