Having physical issues

Have u had covid bad ever?

Hyper mobility spectrum disorder can cause loads of symptoms. I’m trying to get my daughter genetically tested for ehlers Danlos as I have scoliosis and had chronic fatigue since age 16, my cousin is often off work due to her joints and also diagnosed hasp, my neice also has joint issues and is now needing surgery on her shoulder where it’s dislocated so often. So definitely think there’s a link there. We had to pay privately (fortunately grandparents paid) to get her diagnosed and then an expert patient psychotherapist was recommended. An expert patient is someone with the qualifications, but also have the condition or a similar one themselves. She was brilliant at helping my daughter come to terms with it and sharing top tips. They explained that everything is a bit sluggish so has to work harder to get the same results eg breathing and digestion. So if these basic activities are making your body work twice as hard before you even get out of bed/chair no wonder you’re fatigued. All of your joints are kind of wobbly thus making your muscles work harder when you do move. Physiotherapy helps to tighten up loose joints as and when, but honestly she’s had no consistent care from nhs since the start of this journey. The biggest thing we learned was that if she ever gets pregnant NOT to have an epidural as she might not heal from it. I know she got in contact with a society who sell a reasonably priced ‘handbook’ which has been useful too, but unfortunately I can’t think of their name right now. HMSD also causes tougher skin so when having piercings and even her recent blood test it was commented on. If you do some research you might find some helpful info. I believe in USA it’s referred to as Ehlers Danlos Hypermobility, in the UK it seems specialists refer to it as HMSD but GPs still seem to call it ehlers Danlos. If I find the name of the organisation I’ll update you.

@calflye

About a month ago I had similar symptoms, exhausted, head felt it was in a vice, aches in my joints, very lethargic and generally run down. It took me almost three weeks to get the energy to walk and get my paper in the morning! I couldn't sleep either which is not like me. I was like this for about two weeks, took another week for the exhaustion to subside a bit, then another week to get some energy back. I have osteoarthritis, had a bilateral hip transplant eight years ago, so panic when I get pain in my knees, I really don't want to have a knee operation and my fingers in both hands are always painful.

After about a month I started to feel a bit better and the sun coming out, helped. Try and rest.

It sounds like me in previous years. It took me 3 years to be diagnosed which I was in 2005. M.E and Fibromyalgia was my diagnosis unfortunately my specialist Professor Daymond has now retired and his patients given back to their GPs for care. I had to pay for a private initial appointment after begging GP for help. Keep pressing your GP for help with this as it takes a while for you to become accustomed to a new way of life. I wish you well for your future.