Cancer talk may not be for everyone

ben2026
ben2026 Community Member Posts: 31 Connected
in Mental health and wellbeing

Hello there I have bad mental health I suffer badly with my depression and anxiety I'm on the strongest medication for both and been on both the last 9 years

10 weeks ago I come across a little lump on my tongue that I thought was a osser so try things like bonjour and other moths things it didn't go away it got bigger and bigger I want to my GP about this he give me antibiotics for it and as it was given me pain some pain relief as well I took the 2 weeks of antibiotics it got bigger and a lump as come along to the other side of my tongue but small like the 1st one started so I go back to my GP given me stronger antibiotics nothing as happening now the lump as split and gone white and yellow the other lump as also gone white and got ABIT bigger I don't think anything more about it to last Friday night I get a lump and the most intense pain and swelling on my throat and tongue I have ever had I have 2 lumps in my neck that is showing as it was so swollen I honestly did think I was not going to make it to morning I go doctors on Monday he told me that you may have cancer that as spread to your throat from your tongue this news as put me in shock my anxiety is all over the place I get a phone call from the hospital nose throat and ear teams in there cancer part saying they booked me in for this Thursday coming for a meeting I'm scared out of my mind now and got my throat going tight and then stopping all the time I googled the lump and seen alot of lumps that is cancer and looked at the stages and if it's right from the NHS page I have stage 4 tongue and throat cancer and the next part of the body it goes to is the lungs

If you have anything to say that can help or been and had this and got over this please message me I'm worried and just looking for something not helping relax mind thank you

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  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    The user and all related content has been deleted.
  • ben2026
    ben2026 Community Member Posts: 31 Connected

    Hello there everyone I have 4 lumps 2 on both sides of tongue and 2 on the same side on my throat now this is what I don't get my throat keep swallowing up and going rock hard and painful on my right side and I feel moving like bubbles in my neck it's weird feeling when it happens I became extremely tired and light headed like I'm going to pass out this as only happened 2 times one in the middle of the night and I thought I was not going to wake back up when I did get to sleep and today out of the blue is this normal as I can feel my glutes in my neck and it's moving but the other lump don't really move but get more harder the more my throat swelling up I been also getting a sharp pain in my tongue on the lump t the back behind and under my tongue IV been on antibiotics now 4 weeks and it's not going down or getting better spit can't be a virus or bacteria thing IV also seen from last night I got little small dots on my inner button lip and IV had a cut ony lip that been there from the same time my 1st lump appear over 9 weeks ies ago

  • ben2026
    ben2026 Community Member Posts: 31 Connected

    If this ends up being cancer I been told that I have to go to and from the hospital alot but I don't drive as I have other health issues which as stop me from.driving but the bus costs 10 pound each time I only get benefits right now is there a way I could get more help as I get the bear minimum from benefits and it's hard to get enough as it is without extra costs thanks

  • Rosie_Scope
    Rosie_Scope Posts: 8,461 Online Community Team

    Hi @ben2026, if you find you need to be travelling to hospital a lot, the hospital may have transport options to help you get to appointments. You'd just need to speak to the patient transport team to see if they can help.

    There's also a scheme that helps people on low incomes, so that might be worth looking into:

    Healthcare Travel Costs Scheme (HTCS) - NHS

  • [Deleted User]
    [Deleted User] Posts: 1,169 Championing
    The user and all related content has been deleted.
  • ben2026
    ben2026 Community Member Posts: 31 Connected

    Sorry I not been on and thank you all for your help and messages and I'm sorry wm123 for going through everything you did it much of being hard and exhausting at the time I hope your doing better now then before

    Update I had my meeting today with the nose head and throat team they put me in a biopsy that I had today now I thought I was only having the one but as I have had a cut on my lip for the last 15 weeks the doctor took one look at it and told me he's never seen this level of deep infection or worse on a lip before and did a biopsy on it as well I had the biopsy on my tongue and lip at the same time now all the medication that nums you as complete gone and boy I'm in alot of pain right now with both I also been put down for a scan that as to happen within 2 weeks timeframe as it's spread they told me they don't know if it is or isn't cancer it can be and spread or it can be a really bad infection but from the way they gone ahead with everything so fast telling me it's the worst and it's cancer as time is not on my side as it's all ready spread in only 15 week from the first thing I got what I thought would be nothing and that's the cut on my lip then the lump then my neck lump but I well soon see I'm extremely anxious about it but i hope that I'm in good hands I keep you all updated when I have more information thanks

  • ben2026
    ben2026 Community Member Posts: 31 Connected

    Thank you all update if anyone is still interested

    I had my scan today on my neck that took about 20 minutes for them to do the doctor did all my neck and keep going back to one of the place I been getting swollen up most when it started on my throat I never told him about it but I'm guessing he see something or more then likely the hospital had it on the notes but he push deep n abit hard there it's made it swollen up again and I feel pain ever time I drink or try to eat something that is alot harder now I have a my tongue and lip from biopsys my lip as been the painful one as got to stop it getting dry not as easy as you think when you had it on your mind and anything that go on it even a drink is painful lol fun days but joking aside I hope I get the results they did book it in for the 10th of next month but I'm hoping that because they did them a lot sooner then planned that the result be back before that as she z that it's more likely when on the phone today so I let you all know when I do but in the meantime if anyone as had cancer how did you deal with it as it gone now have you still got it are you like me waiting which is the unknown I fine hardest

    I know wm123 as deal with this and I wish her all the best in life btw I'm not sure if you did put it back down you still have it as it gone now and how you feeling now years later then when you 1st fine out about it all

    Wishing everyone all the best please all keep safe and enjoy life at it's fully

  • gussiefinknottle1
    gussiefinknottle1 Community Member Posts: 58 Contributor

    Ben, I think I might know something of the anxiety you’re experiencing but please take a moment to remember that it’s not certain yet and that treatments may be better than they were.

    I don’t want to hijack your post but My partner of nearly 40 years was diagnosed with a rare blood cancer called Chronic Myelomonocytic Leukaemia last year and is having chemotherapy to prevent it from getting worse. He may need a bone marrow transplant in the future if it stops working and is still healthy enough to have it.

    If it turns out that you have cancer and need treatment you might qualify for hospital patient transport so you could look into this, you might get it because of clinical need or because of your mental health as this service is not just for patients who have mobility issues.

    Your current circumstances are very unlikely to be unique and almost everyone will suffer some kind of anxiety under these circumstances. My other half had some EFT sessions and they have helped him after initially being told that he might only have 18 months to live. 12 months on and his blood counts have improved significantly, he hasn’t been to A&E in 7 months and hasn’t needed a weekly platelet transfusion for 6 months. You wouldn’t know he has cancer and he seems relatively healthy right now. Yet last summer he was very poorly and looked like he was waisting away and I genuinely thought that by now he might’ve been getting end of life care. It just shows how wrong the unqualified can be (and I’m one of them)

  • ben2026
    ben2026 Community Member Posts: 31 Connected

    Hello everyone thank you all so much for all of your comments and support I really appreciate everyone

    I do have good news from my results I don't have cancer on my tongue or throat which was a big relief

    But they did fine something in my throat it's not cancer but they unsure of what it is so I had a blood test and next step is for a MRI scan they feed all the lumps and can feel that they are all there and the last scan did show a lump as well she thinks it could be related to my sliver glands as she thinks that they are blocked and that's what made the lumps in the area that they are I got a MRI within the next 3 weeks with the results of it and the blood test she sometimes soon it all be looked at

    As for my tongue and that lump she did a full look over and I have a tooth that is digging at that area and needs it taking down and they going to give me a month gard for the next 4 weeks day and night then on only nights to the next appointment but yes it's not cancer

    I want again say thank you and I wish you all the best and happiness 😊

  • gussiefinknottle1
    gussiefinknottle1 Community Member Posts: 58 Contributor

    hello again Ben, I’m so pleased that you got a negative result for cancer, what a huge relief. You must be feeling like a weights been lifted off your shoulders.


    I wish you well.

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