How is your day going?

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Comments

  • Amberpearl
    Amberpearl Community Member Posts: 4,124 Championing

    It's dull here windy 17 degrees

    Never melt hete always rubbish weather

  • Schildpad
    Schildpad Community Member Posts: 1,024 Empowering
    edited June 2025

    Ok. Had a second call.. and they will backdate money etc. they say it will not affect benefitS.. I hope it not affect housing benefits etc.. anyway. Normally good things happen to other people and not to me so I am a bit worry. But Anyway. I hope it will be ok.

  • Rosie_Scope
    Rosie_Scope Posts: 8,935 Online Community Team

    That sounds like good news @Schildpad! As it's their mistake, this kind of money is usually not regarded as capital so it shouldn't affect your benefits ☺️

  • Rosie_Scope
    Rosie_Scope Posts: 8,935 Online Community Team
    https://forum.scope.org.uk/discussion/comment/1033629#Comment_1033629

    I've not seen any news so far @Catherine21, but perhaps there'll be some tomorrow.

  • Rosie_Scope
    Rosie_Scope Posts: 8,935 Online Community Team

    @Schildpad Most of the time it is a year but under some circumstances where it was down to an error of law, it can be disregarded for the length of the claim. There's a little bit of information on this PDF if that's accessible to you. If you're not too sure, it may be worth getting in touch with a benefits adviser to see where you stand. You could try searching on the Turn2Us - AdviceFinder or contacting Citizen's Advice ☺️

  • Schildpad
    Schildpad Community Member Posts: 1,024 Empowering
    edited June 2025

    Thank you. Will read the attachment. It if long but I will.. I will not think too much about it . But he said it does not count As income.. I hope he did not lie. Will see the coming letter. When I read the letter will see.. but to be honest this is too distressing in general. Always scared about it. They cut or they don't.cut the benefits. If I could do something I would rather be on work. But not sure I could cope with it.. it is not wort it.it is very hard to carry on everyday.. and of course they will move to UC eventually. I hope they leave me alone this year but surely will be next year. Still I feel very suspicious but let see what happens. Now will try to relax.. but hard to. I feel eventually they will cut them.. all.governments are attacking,. . Good night.

  • Lou67
    Lou67 Community Member Posts: 8,731 Championing

    Morning all I hope yous are all doing as good as possible.

    @Rosie_Scope
    Sorry I’m just getting back to you thsnks for your kind words.
    I hope your doing well.

    @chiarieds
    Good morning I hope your keeping well, I’m so sorry I haven’t messaged you in a while but I do think of you often and I really hope you and your family are good 🥰

    @Sandy_123
    Hiya Sandy good luck at the dentist today.

    ❤️

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,231 Championing

    Morning everyone thanks. @Lou67

  • Amberpearl
    Amberpearl Community Member Posts: 4,124 Championing

    Morning all

    Well I. Woke up

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,231 Championing

    Morning everyone

  • Amberpearl
    Amberpearl Community Member Posts: 4,124 Championing

    I'm. Very tired today

    I can't feel my toes again

    Completely numb

  • luvpink
    luvpink Community Member Posts: 5,220 Championing

    I didn't sleep last night so I'm really tired and aching all over from my fibromyalgia.

  • BroughAndy
    BroughAndy Community Member Posts: 13 Listener
    https://forum.scope.org.uk/discussion/comment/1034174#Comment_1034174

    Morning luvpink, sorry to hear about your condition. From chats with someone, I believe it flares up worse some days than others?

    My day started well as I took car to get alloy wheels "dipped" and repainted to remove awful high kerb scratches. They are a nice friendly bunch you in Middlesbrough.

    The walk back home is very pleasant.

    IMG_20250604_083713.jpg
  • luvpink
    luvpink Community Member Posts: 5,220 Championing

    @BroughAndy

    Hi thank you.

    Yes fibromyalgia is a fluctuating condition and I am in a flare up today but the sun is shining here and I'm going out later with some friends to a little fishing village by the sea, not far from where we live.

  • Teigr
    Teigr Community Member Posts: 5,080 Championing

    Good afternoon from rainy Paris.

  • Amberpearl
    Amberpearl Community Member Posts: 4,124 Championing

    It's not a good day

    Just been diagnosed the atrial fibrillation

    My pulse is dangerously high

    Come on outnof the blue

    I've got to take beta blocker s tk get heart rate down

    Need blood thinners, but have to wait for blood test results

    I've been referred to cardiology

    Also I went Dr's because of high pulse and numb feet and crooked toes

    I'm. Seeing the rheumatology on tues. He wil. Sort out the numbness.thinks it's linked to my lupus

    I. Have a fungal infection in my toes

    And severe osteoarthritis

    Need xrays and a referral to podiatry isnowsame day as rhemotology Tues 430 for feet

    12 20 for rhemotology

    On too if that I'm. Having severe hot flushes

    I've made it to the pharmacy

    Not sure I want beta blocker s

    I feel. Very upset and stressed

    She said it's nothing I've done. Af can come on suddenly to anyone

    Good job I do regular BP. Checks as my pulse is always 40 or 50

    Now it's 124

  • Teigr
    Teigr Community Member Posts: 5,080 Championing

    Morning all.

    That's a lot to take in at once @Amberpearl,I hope your appointment goes well.

  • Rosie_Scope
    Rosie_Scope Posts: 8,935 Online Community Team

    Morning everyone, hope you're all well today.

    That's a lot to deal with @Amberpearl, no wonder you're feeling upset! Hopefully the cardiologists and other specialists can get you feeling more comfortable soon. Look after yourself 💛

  • Amberpearl
    Amberpearl Community Member Posts: 4,124 Championing

    The nurse rang with my blood tests results

    My kidney function test normal

    Liver normal

    No to diebetes

    No to thyroid

    Chlorestral slightly raised but better than last time

    My heart enzyme test was raised

    I'm. Now in a panic

    Sge says possible raised due to fast pulse

    I. Took a beta blocker last night

    This morning my BP was 121 75 pulse 92

    Much better than yesterday it was 169 over 114 pulsev124

    I def have afib

    Waiting for the referral to cardiology need an scan

    Going rheumatology Tues at the hospital 12 20 and foot clinic is near my home at 430

    Im.in a real. State

    I feel. Upset and stressed

    I'm not keen on so many meds

    The nurse sent another prescription to the pharmacy for blood thinners

    I'm. To collect it today and start tomorrow

    I'm. Feeling very scared

  • Rosie_Scope
    Rosie_Scope Posts: 8,935 Online Community Team

    Hope you're okay @Amberpearl, it's understandable that you're feeling scared and upset by it all. Take each day as it comes and try to relax if you can manage it. I know that's probably easier said than done with all that's going on but as someone suggested above, maybe lots more cat cuddles are in order 💛

    Fingers crossed that you're not waiting too long for the cardiology referral to come through.

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