HNNP
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lee1971
Community member Posts: 6 Connected
I suffer with hnnp. Just recently had genetic test which was positive. Just wondering does it get worse as I get older?
Im in a lot of pain when u get an attack.
Im in a lot of pain when u get an attack.
Comments
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Hello @lee1971! Welcome to the community.
I know there are some other people on the community with experience of HNPP who may be able to help you - @firegem71 and @amandawisehall are you able to offer Lee any words of advice or support? -
Thankyou. Much appreciated
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Hi Lee, can I ask how old you are? How long did your first episode last for? Amanda
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Hi Amanda, im 46. My first episode lasted 3 weeks or so. At the moment im in no pain. Then it can come anytime with no warning. Lee
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Hi Lee, thank you for replying...you will find that as you get older you will have more episodes, even if they only last a few moments.
Did your doctor talk to you about sitting positions etc? I find gentle swimming helps relieve some muscle pain. -
Hi @lee1971
Welcome to our online community/website.
I do hope that we can help & support you.
I have found you some info on our site that might be ok for you ??????
https://community.scope.org.uk/discussion/35857/new-to-this-forum-hnpp
Please Please let me know if I can help you further ???
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